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-   -   Can you share advice on my painful legs? (https://www.neurotalk.org/multiple-sclerosis/114256-share-advice-painful-legs.html)

Aarcyn 02-15-2010 10:11 PM

Lady!!! Leg Warmers!!! What a great suggestion for my cold legs. Now I just have to find some!

I take Baclofen but I do not think it helps very much.

My legs are getting stiffer all the time. I record an exercise program and find time in the morning to "work out" and try to stretch my stiffening legs.

I have to modify an already modified work-out. It is for women who are "Fabulous and Forty" or "Fifty and Foxy."

How I would love to have a personal massage therapist to help me with my woes! Well, I could but I would have to pay $!

Lady 02-15-2010 11:17 PM

Leg warmers are the trend again. I see them now in many of the younger generation stores. I got mine at a dance studio that has a store for kids/women to buy their stuff to dance.

Must keep the leg muscles warm or get Charlie horse cramps and sore muscles when dancing. They have some real soft ones now, and all colors and materials.

I had mine from eons ago, but needed to replace for years and could not find them. Now they are everywhere. I use them when home, or outdoors under my jeans.

If I don't wear them, my muscles wake me up with a bad screaming Charlie horse, if I walked outdoors that day on concrete, with our cold weather.

Oh how I miss dancing. :( I would look like a drunken dancer and fall over just from the solo movement, and with nothing to hold on to. (sigh)

tkrik 02-16-2010 03:26 PM

Leg warmers are great! I wore them on New Year's eve as were were going to be outside and it was in the low 20s. They really helped.

Debbie - I get that way too. AMN gave a great description and I can totally relate to that. Being so sensitive to drugs and having to make the decision between being doped up and sleeping all day and just dealing with it, I chose just dealing with it. Taking medicines for "quality of life" actually took away my "quality of life."

It is a game of trial and error on what will work for you and what won't work for you. So far I do pretty good on the neurontin and by taking my Epsom Salt baths as well as daily walks (10 minutes or so at a time but no more than 30 minutes - just can't do 30 minutes) and yoga.

Hope you feel better soon.:hug:

poochie 02-19-2010 10:57 AM

Are your legs weak? I'm having so many new symptoms lately. Why? Am I having an attack of different symptoms, I keep wondering if this disease is progressing, it's been bad since Oct. My doctor even took me off the statin drug thinking that was the reason for the painful legs, I guess not. This seems to stay on my mind all the time, I need to stop thinking about it, I know I need to just let each day come as it will, but that's hard when you don't know what's going on, I just haven't had anything go on for this long before, I guess I'm just having a bad day, or several bad days. I'm not really feeling sorry for myself, just so confused, I don't want to take the steroids, I don't like the effect they give me, and what else can the doc do, but give me another pill, enough is enough.

daisy.girl 02-20-2010 07:24 AM

Can anyone tell me if the cramping/achy/tingling/sore legs are a sign of relaspe or will this symptom stay with me even when in a remission?

I am so new to this.....and I read about some of you being in remission for years, so I am wondering what, if any, symptoms do you have during the years of remission??

Lady 02-23-2010 02:40 AM

Hi RelyonHim,
It is really different for all of us. Some only have leg problems when in a relapse, others have it from having the disease a long time and it is residual damage that doesn't leave when remission comes.

Then there are others that get it right away and are stuck with it.

Others come out of relapse with no lasting effects at all.

Also it depends on where your lesions are located. Brain or Spine and which type of MS you have. So I think that is a very hard question to answer without getting a lot of different opinions. We are all unique and no one gets the same exact symptoms, for the same length of time.

Medications we take and can give these same symptoms to us, or take them away.

We have to figure if we have a individual pattern and work with that, treat it that way, try some meds or go off some. Some DMD's can cause these symptoms too.

We do seem to all have spasticity, cramps, charley horse-like calves at some point. It also depends on our activity, normal daily, too much, or no activity at all.

Maybe yours is because of a relapse and will go away. Or not in a relapse and time will make it better, or worse. No crystal ball, only trial and error. Even our doctors can't always find the cause and treat it.

Sorry I can't give you a better answer to assure you that things will be fine. It may just come and go, that would be about the best to hope for.

DM 02-23-2010 04:32 PM

Hey Deb! Ditto on what the others have said. This Winter my legs seem to ache alot and activity makes it worse. I am doing PT, but that hasn't helped long term. *PT is for hip pain* Hope you can get it figured out and the pain improves.. .

Hey maybe wer'e having growing pains. I remember my parent's telling me that when I was a kid. Gee, I never did grow that much, so guess that's not it. take care Deb.


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