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-   -   Got my IVSM stuff delivered... (https://www.neurotalk.org/multiple-sclerosis/115622-ivsm-stuff-delivered.html)

Debbie D 03-01-2010 10:06 PM

Thanks, Sal...I posted on Daily struggles or whatever it's called...I didn't take it out of the fridge so it was cold going in, but I feel terrific!! Wish these darn drugs weren't so dangerous for you, I'd live on them!

My neuro has the nurse come every single day...he's such a stickler for a slow drip...90 mins. minimum. also wants complete metabolic panel, several finger sticks for glucose monitoring, blood pressure/pulse and another blood test that I can't remember...the nurse says he's a very thorough neuro...makes me feel good about that. So since I want to go work out I told her to take out the port. Or whatever it's called...darn these roids haven't helped my memory:o

It wasn't as difficult following a low sodium diet as I thought it would be...:)

Debbie D 03-01-2010 10:08 PM

Oh, something funny...when I looked over the paperwork, the reason for treatment listed was "Multiple sclerosis severe relapse."

Really? I have MS? Severe relapse? Me?

I still don't accept it:rolleyes:

barb02 03-02-2010 11:27 AM

Debbie, Glad the 'roids went well for you yesterday. I have only had one, 5 day treatment with them, but I hated the way they made me feel. Acid reflux, light sensitivity, major skin breakout, increased heart rate for several weeks, insomnia. Isn't it weird how these meds affect all of us so differently?

Debbie D 03-02-2010 03:08 PM

Just like the disease they're treating, Barb...we're all different...

I posted on Daily Insights (hah hah I remembered the name!) that I'm not doing as well today after the infusion as yesterday...cold, low body temp and low bp...the home nurse called my neuro's nurse to let her know, and I'm on rest and liquids for the rest of the day. I hope this doesn't last through tomorrow morning...I have to take the inlaws for a couple of dr. appts.


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