[sabimax]

looking for any info on peoples experiences there, if they went there and that is where diagnosed with MS or any other dx?? If they thought worth it.... info on best way after getting referred there to make sure they plan to check me out totally!!

just any advice, experiences to share etc would be sooo appreciated. For any that do not know me, I am undx... have had MS like sxs starting back 10 yrs ago.... numbness/tingling pain, eventually bad enough went on neurontin, balance issues, weakness in right side, right eye blurriness... had many testing done around my small town area... just thinking I need a real place to overall check me out...tired of limbo... and just feeling like terrible... hugsss and thanks, sarah

[Natalie8]

Hi I sent you a PM about my experience there.

[sabimax]

thanks for your info and your experience. sarah

[Dejibo]

I didnt go to the mayo clinic, but wanted to share a bit of my experience.

The local MD took notes of all of my sx, and history, and said "i think you may have MS" and packed me off to the local neuro. The local guy said "you are too old for MS" went on to talk about anxiety, and saw my MRI has lesions, and so forth, but was not quick to hand me any hope. He was quick to talk about migraines, stress and how difficult it is to dx MS. Local MD said, he would prefer I get at least one opinion from an MS center, and packed me off.

The MS center which takes hours to drive to, repeats the MRI, repeats the blood work, and examines me on several repeat visits. From balance to vision I was examined. After a couple of visits, they sat me down and said "yep, you have MS, and have had it for many years." They went on to say that alot of MDs wont dx you past your 40s but what they are forgetting is that most of those dxd with MS have had it for years. It was not an easy way to get a dx, but I found at most medical centers that specialize in such things, they go far out of their way to move every stone to either definitively rule it in or out. either way, you will know.

Hang in there. its tough enough to be sick, but to not have answers can make you batty. I spent years being told I have migraines, and anxiety.

[Debbie D]

My neuro did his residency and I think a fellowship there...they have an excellent neurology dept.
Take as much data and films as you can, and write down the main symptoms and when they first occured...
Sarah, it took so many of us such a long time to get a dx...stay strong...feed your body good foods, drink plenty of water, get rest, and have faith that you will get an answer...

[Friend2U]

I have not been there, but I had a neighbor whose family had been there at different times for a variety of reasons, and they have always been pleased. they have to travel approx 1000 miles and feel it's worth the trip. They have a daughter who was dx with ms there. She is still going back periodically for checkups and really likes her neuro. But I'm not sure who he is. And we know longer live near them. Hope this helps.