here is my whine/vent/rant or whatever you wish to name it.

#1 I HATE this disease!

I had an MRI recently (horribly expensive btw) and seem to be mid flare. The MRI is clean/clear/ no visible changes from the last MRI. This is good news yes? Then, what is causing all my recent symptoms? The MS folks say its "probably an MS flare or exacerbation"

I am ever so grateful that my MRI is stable, but I want answers! I want to know what is causing this up tick in symptoms, and I want tools to fight it with. I dont want a "probable" answer. I want a concrete answer of "oh! look, its right there! lets fix this!" *sigh*

am I the only one that is relieved by good news, and then...sorta disappointed by it?

There is info out there about how patients that show few lesions will show hundreds when run through a 7 Tesla MRI machine.

This machine is not in use for the general public, but it illustrates how so many of our lesions are there, but don't show up on the "normal" machines we are going through.

Your head is probably full of lesions which are responsible for your symptoms.

The fact that our lesions don't match our symptoms is a reality, but the fact is that many don't show up to be counted even though they are causing issues for us.


gmi

Sorry for your "good news"...wish you had some answers...I always wonder what's going on in my body that the docs and I don't know about that could be causing flares Ignorance is bliss, IMHO...

I know how you feel, Dej. I've had that before. Mixed feelings when you have something going on and the MRI doesn't seem to match. My MRIs have been "stable" for three years, but I do have some uptick in symptoms. Some are probably the Fibro, but I have a few that I'm sure are from the MS but aren't showing.

(((Dej))) I am going through the same thing right now. Symptoms and no set answer, just a take this pill and we'll see you back in 6 weeks. I too want to know what I am fighting so I can fight more effectively and efficiently. I get tired of the floors dropping and my brain quaking/shifting.

While we like to hear that good news of no progression, we also like to know why the symptoms are acting up and what we should do about it. What you are feeling is perfectly normal right now, as upsetting as it may be.

I don't have much advise, just hugs and prayers that you start feeling better soon.

Dej I go thru this every time I have a MRI, as I almost wish a machine in my small towns would show something... is that sad to wish a lesion on me?? but with all the sxs looking and acting like a duck I think it is a duck!! but can not be a duck till certain criteria is met.... uggggg venting with you lol
sorry

hugss to you, I know what you mean, sorry about the good news, sarah