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View Poll Results: How many of you have been diagnosed with MS AND had Epstein-Barr virus?
Yes, I had EBV as a teenager 12 46.15%
Yes, I had EBV as a teenager
12 46.15%
Yes, I had EBV, but as an adult 5 19.23%
Yes, I had EBV, but as an adult
5 19.23%
I may have, but never diagnosed 3 11.54%
I may have, but never diagnosed
3 11.54%
I have no idea? 6 23.08%
I have no idea?
6 23.08%
Voters: 26. You may not vote on this poll

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Old 03-23-2010, 09:53 PM #1
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Poll How many of you have had Epstein-Barr virus (EBV)?

I'm wondering how many of you have ever had Epstein-Barr virus? I had Mono when I was in the 9th grade, and if I remember correctly, I had a horribly swollen throat and had to take naps in the nurses office for 3-4 weeks, because I would practically fall asleep in my classes. With the studies that are out, showing that there may be a correlation between EBV and MS I am a bit concerned because my daughter had it pretty bad last fall. I sure hope there will be a way to know what her odds are, and if there was anything we can do to protect her.
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DO WHAT makes you happy, Be with WHO makes you smile, Laugh as much as you breathe & LOVE as LONG as you LIVE




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July 2006- First significant SXs, suspect it started back in mid 1990's
1/21/09 - Positive MS Dx
2/17/09 - 2nd Positive MS Dx
4/2/09 - MS Dx 3rd Neuro - finally found the Dr. who has the characteristics I was looking for
.

10/8/09-optic neuritis flair, Cog Fog, chronic headaches
5/4/09 - 12/15/09 Copaxone
1/15/2010 - First Tysabri Infusion - 3/25/16 - Last Tysabri Infusion
3/3/16 - signed the documents to start the Lemtrada journey
4/25/16. Lemtrada begins.

Last edited by DizzyLizzy; 03-23-2010 at 10:09 PM.
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Old 03-23-2010, 10:08 PM #2
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I'm sure you'll get many better responses than mine, but if it makes you feel any better (and I know it's hard when your kids are involved), nearly everyone has the antibody for EBV, which means nearly everyone has had it in some form or another, to one degree or another, at some point in there lives. From what I understand, it may serve as a trigger, but is not the cause.
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Old 03-23-2010, 10:10 PM #3
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Is there a reason why you didn't include a "NO" option Amy?

I know for sure that I haven't, but you've not given me an option to vote that way. Would you like that added?
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Old 03-23-2010, 11:07 PM #4
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I had a pretty serious case of mononucleosis in late '95 and early '96. Took me over a year to recover, started noticing a lot of weird things in '97 that I now know are MS symptoms. Altho, I do remember having something that I now recognize as The Hug back in the early 90s....so I might have already had MS when I had mono...I do think the mono set something off MSwise and must have made the MS Trolls angry, since I've been having stuff going on since about 1997.

Things just never got bad enough to go to a doctor until I had numbness in early 2006 and optic neuritis that summer.
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Old 03-23-2010, 11:37 PM #5
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Quote:
Originally Posted by Koala77 View Post
Is there a reason why you didn't include a "NO" option Amy?

I know for sure that I haven't, but you've not given me an option to vote that way. Would you like that added?


I totally missed it! I will try to add it.....thanks for the heads up Koala!
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DO WHAT makes you happy, Be with WHO makes you smile, Laugh as much as you breathe & LOVE as LONG as you LIVE




.

July 2006- First significant SXs, suspect it started back in mid 1990's
1/21/09 - Positive MS Dx
2/17/09 - 2nd Positive MS Dx
4/2/09 - MS Dx 3rd Neuro - finally found the Dr. who has the characteristics I was looking for
.

10/8/09-optic neuritis flair, Cog Fog, chronic headaches
5/4/09 - 12/15/09 Copaxone
1/15/2010 - First Tysabri Infusion - 3/25/16 - Last Tysabri Infusion
3/3/16 - signed the documents to start the Lemtrada journey
4/25/16. Lemtrada begins.
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Old 03-23-2010, 11:46 PM #6
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Quote:
Originally Posted by PolarExpress View Post
I'm sure you'll get many better responses than mine, but if it makes you feel any better (and I know it's hard when your kids are involved), nearly everyone has the antibody for EBV, which means nearly everyone has had it in some form or another, to one degree or another, at some point in there lives. From what I understand, it may serve as a trigger, but is not the cause.
Thanks Polar...I do worry about my DD, but I would just like some peace of mind knowing if there were a way to 'prevent' her from the possibility. Autoimmune diseases do run in my family...Mom has had Scleroderma for @ 20 years, my maternal Grandmother had SEVERE Rhumatoid Arthritis, my Mom's uncle has Parkinsons, sister -mild Rhumatoid has started....etc, etc, etc. I just need to keep thinking positive, since that is really what I try to focus on, but sometimes the research information makes me start to worry again, but I don't know I could ever 'not worry' about the kids....so I'll pull my big girl panties on!
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Amy



DO WHAT makes you happy, Be with WHO makes you smile, Laugh as much as you breathe & LOVE as LONG as you LIVE




.

July 2006- First significant SXs, suspect it started back in mid 1990's
1/21/09 - Positive MS Dx
2/17/09 - 2nd Positive MS Dx
4/2/09 - MS Dx 3rd Neuro - finally found the Dr. who has the characteristics I was looking for
.

10/8/09-optic neuritis flair, Cog Fog, chronic headaches
5/4/09 - 12/15/09 Copaxone
1/15/2010 - First Tysabri Infusion - 3/25/16 - Last Tysabri Infusion
3/3/16 - signed the documents to start the Lemtrada journey
4/25/16. Lemtrada begins.
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Old 03-23-2010, 11:52 PM #7
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Quote:
Originally Posted by amyblake View Post
I totally missed it! I will try to add it.....thanks for the heads up Koala!



I don't know how to edit the Poll to add a 'no' option?! Any suggestions? It was such an obvious option to miss!
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Amy



DO WHAT makes you happy, Be with WHO makes you smile, Laugh as much as you breathe & LOVE as LONG as you LIVE




.

July 2006- First significant SXs, suspect it started back in mid 1990's
1/21/09 - Positive MS Dx
2/17/09 - 2nd Positive MS Dx
4/2/09 - MS Dx 3rd Neuro - finally found the Dr. who has the characteristics I was looking for
.

10/8/09-optic neuritis flair, Cog Fog, chronic headaches
5/4/09 - 12/15/09 Copaxone
1/15/2010 - First Tysabri Infusion - 3/25/16 - Last Tysabri Infusion
3/3/16 - signed the documents to start the Lemtrada journey
4/25/16. Lemtrada begins.
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Old 03-23-2010, 11:53 PM #8
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Quote:
Originally Posted by Koala77 View Post
Is there a reason why you didn't include a "NO" option Amy?

I know for sure that I haven't, but you've not given me an option to vote that way. Would you like that added?
If you could add it, I would really appreciate that!
__________________


Amy



DO WHAT makes you happy, Be with WHO makes you smile, Laugh as much as you breathe & LOVE as LONG as you LIVE




.

July 2006- First significant SXs, suspect it started back in mid 1990's
1/21/09 - Positive MS Dx
2/17/09 - 2nd Positive MS Dx
4/2/09 - MS Dx 3rd Neuro - finally found the Dr. who has the characteristics I was looking for
.

10/8/09-optic neuritis flair, Cog Fog, chronic headaches
5/4/09 - 12/15/09 Copaxone
1/15/2010 - First Tysabri Infusion - 3/25/16 - Last Tysabri Infusion
3/3/16 - signed the documents to start the Lemtrada journey
4/25/16. Lemtrada begins.
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Old 03-24-2010, 08:00 AM #9
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Although there is some presumed link...I don't know how it can be used because almost the entire adult population has the EBV.

Epstein-Barr Syndrome is very common, although most people don’t even know they’ve contracted it. It is estimated that as many as 95 percent of adults older than 35 have been infected with the Epstein-Barr virus, making this one of the most common illnesses in developed and undeveloped countries around the world.
http://www.life123.com/health/medica...ormation.shtml
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Old 03-24-2010, 08:06 AM #10
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Quote:
Originally Posted by amyblake View Post
I'm wondering how many of you have ever had Epstein-Barr virus? I had Mono when I was in the 9th grade, and if I remember correctly, I had a horribly swollen throat and had to take naps in the nurses office for 3-4 weeks, because I would practically fall asleep in my classes. With the studies that are out, showing that there may be a correlation between EBV and MS I am a bit concerned because my daughter had it pretty bad last fall. I sure hope there will be a way to know what her odds are, and if there was anything we can do to protect her.
You can protect her with Vitamin D....Please read the following article.
http://www.webmd.com/multiple-sclero...may-prevent-ms

also, if you google 'Vit D to prevent MS'....you will get a lot of info.
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