NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)
-   -   new member (https://www.neurotalk.org/multiple-sclerosis/117932-new-member.html)

Lady 03-31-2010 01:13 AM

Hi Caligirl,
Welcome :)

I used to say, "If you don't got it, you don't get it". Not proper English, but people get my drift. I am glad you decided to join us. We learn from each other. I have had MS a loooong time too, like Sally said.

But we never forget how it was when it was all so new to us. Did it take you a long time to get a diagnosis?

Those medications are both the type to make you sleepy. Can you cut back down on the Baclofen to 10 mg a day? That may help. Ask your doctor to be sure.

I hope we hear more from you. We love new people. Nice to meet you. :)

Judy2 03-31-2010 03:12 AM

Hi Caligirl and WELCOME to the group!! I'm truly sorry you have to be here, but under the circumstances, it's a great place to hang out. There are so many kind, caring, supportive people here.......and best of all "We get it"! Hope to see you around!!! :)

soxmom 03-31-2010 07:51 AM

hello and welcome Caligirl!

You have found a great place for hanging out and getting lots of info.
The people and admin are amazing!

See you around...:)

calligirl 03-31-2010 08:16 AM

Thank you everyone for the kind words. I have been going through this journey for about 5 years. Lots of tests and different diagnoses, doctors either thought i was depressed or i just had nerve damage from my migraines. Finally i went to the Rocky mountain ms center in CO. and they did an MRI on my spinal cord and found 1 scar and i had 12 lesions years ago but now there are 3 becuase the 12 have kind of gone into each other. I think the biggest thing for me is that i look a little tired but everyone sees me as fine on the outside. so they just don't understand.

My children 14 & 11 have been awesome. My Husband has finally come around after 2 months. I think he just had a hard time dealing with the reality of it.

It is nice to be able to come on here and be able to talk to people about what i am going through and they understand. :grouphug:

Twinkletoes 04-01-2010 01:09 AM

Quote:

Originally Posted by PolarExpress (Post 638521)
Welcome (I think?)..:D
I'm glad you found this place ~ some of the best people on the planet here!

Well, shucks, I get really embarrassed when people talk about me in such glowing terms! :D

But seriously, PolarExp is right: there are some really great people here! (Don't tell her I said so, but SHE is one of them!) Actually, I can vouch for everyone who's posted so far.

Hope you can get some support and answers. Glad your family is supporting you. Welcome!!! :hug:


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