[Friend2U]

I'm have 'little' shooting pains around my pelvic area. When it happens my legs does this kicking thing and I can't control it. It lasts for just a couple of seconds then goes back to normal.

Has anyone experienced this and if so, does it get even worse...what is possible in store for me?
Thank you.

[SallyC]

Sometimes it's a pain and sometimes, just a tickle and up jump my legs to do their little dance. I just consider it another perk of a nerve disease and don't worry about it. Mine doesn't get worse, it just happens once in awhile.

[Kitty]

You know, my Dad used to complain of this very thing. He'd even tell me that he'd be lying in bed and his legs would just jump and flail around all by themselves.
'
He was mostly using his scooter at this time and rarely walked except to transfer. We just assumed it was from lack of use of the muscles.

This, among lots of other sx he had with no explanation have convinced me that he had MS but was just undiagnosed. There's just too many similarities for it to be a coincidence.

I hope you get some relief.

[Koala77]

It sounds like it could be Restless Leg Syndrome which is apparently not MS related, but has a surprising high incidence in people with MS.

Has your doctor mentioned RLS?

[Lady]

F2U,
I get that when I have a relapse. My MS Neuro I had in the way early days said it was "Myoclonic Jerks". I rarely get them anymore, but you feel that quick shot of pain and then the leg shoots upward, I noticed this only in the recliner or in bed. Maybe once or twice and that's it per day with relapse.

Is that what you mean? This may help to read.

http://en.wikipedia.org/wiki/Myoclonus

[Koala77]

Originally Posted by Lady

F2U,I get that when I have a relapse. My MS Neuro I had in the way early days said it was "Myoclonic Jerks".....

Thank you Lady, I'd forgotten all about those and I get them as well.

With a diagnosis of MS, that sounds like a more logical suggestion.

[Friend2U]

Originally Posted by Kitty

You know, my Dad used to complain of this very thing. He'd even tell me that he'd be lying in bed and his legs would just jump and flail around all by themselves.
'
He was mostly using his scooter at this time and rarely walked except to transfer. We just assumed it was from lack of use of the muscles.

This, among lots of other sx he had with no explanation have convinced me that he had MS but was just undiagnosed. There's just too many similarities for it to be a coincidence.

I hope you get some relief.

Doesn't hidesight make everything so much clearer? Even with us.
Thanks Kelly!

[Friend2U]

Originally Posted by Koala77

It sounds like it could be Restless Leg Syndrome which is apparently not MS related, but has a surprising high incidence in people with MS.

Has your doctor mentioned RLS?

Anne, I do have RLS. I didn't use to get this jerkiness in my legs though...so maybe it's just part of the natural progression.

I'm not sure why they can say it's not MS related...

[Friend2U]

Originally Posted by SallyC

Sometimes it's a pain and sometimes, just a tickle and up jump my legs to do their little dance. I just consider it another perk of a nerve disease and don't worry about it. Mine doesn't get worse, it just happens once in awhile.

Yes...sometimes mine is more of a tickle and sometimes a little stabbing pain. Not always in the same place. Thanks Sally.

[Friend2U]

Originally Posted by Lady

F2U,
I get that when I have a relapse. My MS Neuro I had in the way early days said it was "Myoclonic Jerks". I rarely get them anymore, but you feel that quick shot of pain and then the leg shoots upward, I noticed this only in the recliner or in bed. Maybe once or twice and that's it per day with relapse.

Is that what you mean? This may help to read.

http://en.wikipedia.org/wiki/Myoclonus

Thank you for the article Lady. Yes, it helped...and sounds like what I'm experiencing. I get them several times a day and sometimes when I am in bed, or sitting or standing. It doesn't really seem to matter. But I 'think' I've been in a relapse for quite some time. Starting to wondering if I'm really in a relapse or if the progression is just here to stay.
Thank you..