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#1 | |||
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Elder
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I have been having a tummy issue for months now. I havent stopped whining. The MS guys said it was the MS hug, maybe. The surgeon guy said my intestine keeps flipping back and forth. The GI guy said it is irritible bowel. I have flairs and remissions and its been awful. it can be extremely painful.
Last night had a huge flair, and went the the ER, so we could finally get a picture or CT during the storm. It turns out to be flairs of pancreatitis, and it showed on CT as inflammation, and my LFTs were up. The ER MD is convinced that after looking at my list of meds, the copaxone is keeping this stirred up. I cant begin to describe just how sick I was last night. We have searched long and hard for why this keeps happening. The big girl MS center is going to make me the topic of discussion for the weekly meeting tomorrow. One of the MDs wants me to keep taking copaxone, even if it is the root cause. ![]() Has anyone else ever heard of this? I have not seen it in any research that copaxone can "cause" this, but from what I understand it can keep it unhappy. Im tired of being this intense level of sick. Something has to give. even if its dropping the needles, and going to CAM.
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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"Thanks for this!" says: |
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#2 | ||
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Senior Member
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So sorry that this stuff keeps kicking you Dejibo!
Your symptoms sound a lot like what my grandmother went through for years. She was not on any meds and did not have MS, just IBS and kinking intestines that would hit her out of no where. She often had pancreatitis as well. |
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#3 | |||
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Wise Elder
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Jim's gastro told him he most likely has an ulcer from all the meds he takes. The only way to stop the trouble is to stop the meds. Not an option.
Hope you get it figured out. Did it become more intense after the steroids? If it is the shot I don't blame you for wanting to stop it.
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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#4 | |||
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Grand Magnate
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Sorry that you are in so much pain. My first thought was the steroids too as they can cause major tummy problems. I had to go on nexium after my experience with the 'roids and have not been able to go off of them. I also have ongoing problems with IBS. However, this seems to be an ongoing problem for you. I would go off of the copaxone if it is the likely culprit. Of course that is easy for me to say since I could not tolerate it. Take care!
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#5 | |||
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In Remembrance
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So sorry Dej.
![]() ![]() The Terrible 3s...Spring, Stress and Steroids. ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | Dejibo (04-06-2010) |
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#6 | |||
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Elder
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(((Dej)))...so sorry, dear...
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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"Thanks for this!" says: | Dejibo (04-07-2010) |
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