Hi all,
Saw the neuro this afternoon. After discussing sxs returning after IVSM, and my balance getting even worse, we discussed what to do. He feels that the MS is "changing". Suggested a clinical trial, so I begin after the Copaxone is cleared from my body, around June.
He loved my Hawaii tan, by the way...

Do you know what trial he is suggesting?

Holy crow my neuro says the same thing today. 3 more months of TY then I am off to UVA for trials because she has run out of options.

Good luck Debbie, keep us updated...oh and I hate your tan..

Good luck to you too, Leggz.

Hey Deb, wanna see if we can do them together? LOL that would be fun, we could be lab rat buddies!

It's with Ely Lilly...a subcutaneous injection. Yeah, let's hold hands and be lab rats together!! Or guinea pigs, as I like to think of myself!
Neuro's nurse told us that 6 out of 7 patients receive the med, as opposed to a placebo. And any time that my doc feels it's not helping, he'll yank me from the study.

Oh, yeah, Sal, my neuro is married to a Hawaiian native...that's why his opinion of my tan matter more than yours

Deb and Legs, I see that Ely Lily and Company are recuiting for:

Multiple Subcutaneous Doses of LY2127399, an Anti-BAFF Human Antibody, in Subjects With Relapsing-Remitting Multiple Sclerosis

Purpose
To look at the ability of LY2127399 to reduce magnetic resonance imaging (MRI) lesions at 12, 16, 20, and 24 weeks compared to placebo.

For Deb, location is in:
United States, Illinois
For additional information regarding investigative sites for this trial, contact 1-877-CTLILLY (1-877-285-4559, 1-317-615-4559) Mon - Fri from 9 AM to 5 PM Eastern Time (UTC/GMT - 5 hours, EST), or speak with your personal physician. Recruiting
Northbrook, Illinois, United States, 60062
Contact: Eli Lilly

And for Legs,

United States, Virginia

For additional information regarding investigative sites for this trial, contact 1-877-CTLILLY (1-877-285-4559, 1-317-615-4559) Mon - Fri from 9 AM to 5 PM Eastern Time (UTC/GMT - 5 hours, EST), or speak with your personal physician. Recruiting
Newport News, Virginia, United States, 23601
Contact: Eli Lilly
For additional information regarding investigative sites for this trial, contact 1-877-CTLILLY (1-877-285-4559, 1-317-615-4559) Mon - Fri from 9 AM to 5 PM Eastern Time (UTC/GMT - 5 hours, EST), or speak with your personal physician. Recruiting
Roanoke, Virginia, United States, 24018
Contact: Eli Lilly

Plus 94 other locations. See FDA site below

http://clinicaltrials.gov/ct2/show/N...ns_ex=Y&rank=1

Thanks, Lady. My neuro actually is in Northbrook...He feels that this study will work better than the ABCs for me, since it works on the B cells (I think that's what he said...can't trust the swiss cheese brain).
One advantage of going into this is that I will be very closely monitored...MRIs, blood work, etc. It will be a lot of time in the car...he's an hour away from me. But they compensate you, so that's cool!

I just checked the criteria. I don't think I would be eligible since I use a cane. You have to be able to walk 1/10th of a mile without stopping or using an assitive device. I could possibly do that in the morning on a good day. I have also had multiple allergic reactions to medications (CRAB's) and ty which also looks like it would disqualify you. Oh well