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Old 04-07-2010, 07:06 AM #11
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Dej, So sorry to hear about this.

Lady already hit on what I was going to say about it being one of the rare side effects of Copax. I'd also check some of the other meds you're on to see if that's a rare one for them too, since it could be a double whammy. I'm all for keeping with the treatments when they are helping, but when it's making you worse - let your voice be heard in regards to your care! Some of them are unaware of the rare effects these drugs have.

I went through that with the Rebif allergic reaction. They couldn't believe it was happening after so long, but they got it after it happened more than once - even at half dose and trying a shot from a new batch. But this is not unusual for me to have an initial tolerance that eventually goes out the window.

Hang in there!
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Old 04-07-2010, 07:22 AM #12
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we have combed thru my meds, and while we dont believe that the copaxone is the original source of the pancreatitis, we do believe its the reason it wont settle down, and each event spikes higher and harder.

I have been on bowel rest, IV fluids, and just bed rest at home, versus doing it in the hosptial. I am a horrible person to stick in the hospital, and after the IVSM and the current round of MRSA and other nasties that are in the hospital here currently, we decided that I would be better off at home. so, I am sitting quietly waiting for this to pass. I am feeling some better, and wouldnt wish anyone on earth to go thru that. it was brutal to say the least.

Thanks for all the good feedback. I was just too sick to look it up. I am still in the breakdown lane, and not sure I will be upright long today either.

You guys rock. I can always count on it, that someone else has already done the research,or gone thru it.
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Old 04-07-2010, 07:24 AM #13
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Wow...I've never heard of these side effects. It's scary that the meds are sometimes worse than the disease...
take it easy, Dej...we need ya around here!!
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