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Old 05-07-2010, 07:48 PM #11
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I am of the opinion that all medications can have side effects, which they must post, even if they are rare.
I am sure that many of these side effects are possible but unlikely in the majority of patients.


I called to find out the status of my request-the neuro's office never sent it in they apologized profusely and faxed it in immediately. I swear...are the patients running things? I should get paid accordingly.
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Old 05-07-2010, 07:53 PM #12
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Thanks. I called them today to ask if they received my paperwork from Dr's appointment last week. They said no. I asked if backlogged, he said no..was up to date as of yesterdays paperwork. Its a Friday so Monday awaits. Why do weekends always come at the wrong time? heh

edit - Deb you posted that as I was typing this. Yes I feel your pain.
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Old 05-08-2010, 09:38 PM #13
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Quote:
Originally Posted by SallyC View Post
SOME SIDE EFFECTS WITH AMPYRA:
Insomnia, dizziness, headache, nausea, weakness, back pain, problems with balance, MS relapse, burning, tingling, or itching of skin, irritation in your nose or throat, constipation, indigestion, pain in your throat. UTI

But these are the things I would take this med to get rid of..Geesh.
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Old 05-15-2010, 06:44 AM #14
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I saw my neuro. yesterday. We talked about Ampyra and decided that I'll give it a try.

The paperwork has begun. I'll get the blood/kidney test done next week.

So we shall see.

Cheers,

Niko
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Old 05-15-2010, 01:17 PM #15
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Reason why Acorda didnt have my paperwork was because i didnt see I had to sign/date form 2x! Faxed it yesterday. Let the paperwork wheels begin.
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Old 05-19-2010, 02:24 PM #16
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Question Ampyra works GREAT for me
Have been on it almost two weeks. probably 50% improvement in walking speed and duration. amazing. I have heard it takes 3 months for full effect?? Does that mean I will see increasing improvement? does anyone know?
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Old 05-19-2010, 04:30 PM #17
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My neuro did not say anything about blood/kidney test. Since I am his first patient that he has prescribed ampyra to, I wonder if he know. I did have blood work a few weeks ago prior to my mri so I think I may be covered.
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Old 05-21-2010, 01:16 PM #18
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My neuro didn't either, Barb.
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Old 06-21-2010, 07:55 PM #19
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I'm approved and Ampyra's overnighted to my door tomorrow!
I sure hope it helps with strength besides walking.

Kicker - still have blood/brushing teeth issue?
Karen - 50% improvement still? Thats exciting! What about arm strength?
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Old 06-22-2010, 09:32 AM #20
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Had my pt evaluation last Tuesday. I have not heard anything from neuro or ampyra. I plan on calling my neuro's office tomorrow to check on progress.
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