NeuroTalk Support Groups - Any Ampyra/dalfampridine user comments?

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- - Any Ampyra/dalfampridine user comments? (https://www.neurotalk.org/multiple-sclerosis/118814-ampyra-dalfampridine-user-comments.html)

I'm fine. Thanks, you guys. It was a spectacularly noisy fall.
-Susan

Been taking Ampyra once every morning for a few months now. I must say it helped. Keep in mind i've done a couple thousand reps of triceps, handgripper, few hundred pool laps ect. Transferring from wheelchair to couch, bed & car is definitely easier then it was a few months ago AND I cut testosterone shots from .5mL every 7 days to .4mL every 7-10 days (only because it was hard to sleep). Prostate might thank me for it too however it's perfect and psa's 1. I'll increase the testosterone when colder weather comes for wheelchair miles.

On top of those exercises, I pushed wheelchair April & May (pre Ampyra) for a total of 24 miles. I'm at lap 470 in pool and cool weather might stop me from hitting 500 but i'll take 470.

You can't take Ampyra, sit on couch and expect muscle growth. I'm satisfied. Push that bod!

Edit - I'm glad I started this thread documenting my experience with Ampyra.

I was taking Ampyra twice a day for about six weeks. I missed one dose and was amazed at how stiff, leg spasms and difficulty with fine muscle movements for balance, became. (Worse than before taking). Then I got on my schedule again. I now changed insurances and must wait for their pre-approval and have one pill left. This is how dependence on drugs occurs so
I will be paying attention to see if things get much worse and if that lasts.

Quote:

Originally Posted by clairelouise (Post 675177)

I have been on Ampyra for almost 2 months now, and have noticed that when it wears off, I am very aware, my legs become weak, I become clumsy, and my coordination is not good.. and when it wears off, my body is definitely worse feeling then it was when I began ampyra. Yesterday am I took a pill and havent since and am very uncomfortable with how my body feels right now.. It is tight and weak and slightly spastic in my legs.. very disturbing to think this may not wear off.. I am not sure what to do. Do I stay off for a bit and see how my body responds? Is it simply going through a 'withdrawl' of sorts?
Anyway, thought I would share this..

Thanks and let us know. I assumed it only helped strength since my sensory is going downhill no matter what I try. I'll switch to twice a day if it helps spasms. 120mg baclofen/day and they're still terrible. Sudden jolts added to the mix lately.

Rebound - Ampyra

Hi I fell asleep before I took my Ampyra last night. I awoke about 2 and felt
OK but when I awoke this morning, the rebound after not taking it was awful
My lower back hurt it was so tight and I couldn't walk and fell. It took me
20 mins. to loosen up enough to get up. I think the company needs to address
this and tell us if we would eventually return to the "before Ampyra" level.
As it was, I grabbed my pill!