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Old 04-15-2010, 11:07 AM #21
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I waited / progressed 3 weeks to see my neuro today and they call this morning to tell me its cancelled!!! Why?? Because he said he's done all he can for me and was offended I had A: extra time allotted for appointment B: pushed for ESTRIOL again! They said we'll mail your records to you if you like. Im sorry but WTF! I knew he was too old. Ive always gone after grey hair doctors but Ive learned my lesson. Neurons dont weave new connections as well when the grey hair sets in!!! Hope i dont offend anyone but im ******! I guess my 3D MRI pictures I compiled were too much for him to handle! I wanted extra time to review mri he just ordered and talk meds. jeeze.
Florida sucks for doctors or at least this area. Neuro #4 oh well.

This is the only part of NY I miss.
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Old 04-15-2010, 06:20 PM #22
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Ok had dinner and pulse rate is back to normal. I made appointment with new neuro. Hey at least i'll get 30-45 minutes this time. Im told try playing dumb. Today was very very frustrating. Boy I wish the Prozac didnt cause sweaty side effects. Well I have 3 more weeks now to wait.

So..to the thread's title..Do you all question your neuro's advice? lol. yes.
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Old 04-15-2010, 07:20 PM #23
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Eddie~where are you in Florida? I know a couple of good neuros.
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Old 04-16-2010, 11:45 AM #24
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[quote=EddieF;644641]
I knew he was too old. Ive always gone after grey hair doctors but Ive learned my lesson. Neurons dont weave new connections as well when the grey hair sets in!!! Hope i dont offend anyone but im ******!

So that's what's wrong with my Neurons.,,my roots have grown out..

Well now I'm pizzed!!!
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Old 04-16-2010, 03:26 PM #25
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Sally I was so upset/mad/pizzed/and everything else yesterday. i still get mad thinking about what he did to me. I was excited to see him and show him what i did with mri images and to continue discussion/paperwork for Ampyra, estriol, show him my log of exercises ive done over the past 3 years and more. Getting mad typing about it now so I say bye for now
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Old 04-16-2010, 07:28 PM #26
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I understand your anger, Eddie. Some holier than thou Doctors, especially Neuros, are insufferable Jerks.

I wish you luck with your new one.
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Old 04-17-2010, 03:32 AM #27
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And sometimes it doesn't matter what color hair they have!
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Old 04-21-2010, 07:51 PM #28
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My neuro dropped me! Just for having the fda themself fax neuro IND form for estriol so all would be legal, nothing under the table, done right by law! He pushed Tysabri on me last year after I requested estriol about 3x and I finally gave in because im going downhill fast. Thankgod I made new neuro appt. last week for next week. Yesterday will likely be last Ty infusion under his name. I'll stop rambling since I can't use the words I'd like atm!

Link to pic of letter I had to drive 10 miles for today and to my surprise what it said:
http://neurotalk.psychcentral.com/al...pictureid=5227
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Old 04-21-2010, 09:16 PM #29
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I'm not too surprised since most God-like Neuros, don't like to be told what to do, by their patients.. I am so sorry, though, ED. let us know how it goes with the new Doc.

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Old 04-22-2010, 06:35 AM #30
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I think the problem for some neuros is MS patients neither go away cured and/or most don't die. They always come back reminding the neuro how little the neuro knows or can do about MS. Keeping up with stuff about MS is a full time occupation. I hope my MS specialist neuros are talking MS with colleagues all the time (lunch. Men's room, hall, etc.). I found my one general Neuro lacking in MS area. MS is a specialty area.
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