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Old 04-22-2010, 09:50 AM #31
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I agree. MS is definitely a specialty area, but even some specialists are maddening.

Eddie, I can feel your pain. I tried Copax, then had to switch to Rebif. When I had an allergic reaction to the interferon, my neuro insisted on Tysabri. After much discussion with my hubby, we decided against it. Way too many weird reactions to meds under my belt.

My neuro told me he was over his head (honest, at least), but the part that made me mad was that the specialist on staff at that group refused to help me after I said "no" to the Ty. My neuro didn't leave me in a lurch and transferred my case to the local MS Center. Originally had an appointment this month, but the head dude took my case. He had to reschedule because he had an emergency confrence for CCSVI. See my Rhuemy first in June, and I'm thinking of bringing up the subject of LDN when I see him.

Hope the next neuro is more helpful for you!
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Old 04-22-2010, 03:28 PM #32
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I think the fact that MS has so many different ways of presenting symptoms makes it a unique disorder to treat. And the neuros have to keep up with the current research, theories and clinical trials to be able to help their patients to the best of their ability.
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