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Old 04-13-2010, 03:20 PM #21
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Dej:: So sorry to hear how bad you are feeling.

My prayers are going out to you.


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Old 04-13-2010, 05:53 PM #22
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So sorry you are going through all of this. I hope you continue to feel better and get out of there and get home. Sending tons of .
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Old 04-13-2010, 06:05 PM #23
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Wish you the best Dej. Congrats on Pic Line. I ask chemo nurses when im getting Ty why doesnt everyone in here you stick 5 times have 1? $$.

If intestines spring a leak anywhere, that'll make you deadly ill. Ive heard 1 case. I dont know if youre able to drink tons of water but that sure helps i.v. stick. Ive seen people pee orange and man..thats rough on internals.

Good luck.
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Old 04-13-2010, 06:07 PM #24
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Quote:
Originally Posted by Dejibo View Post
I am pretty sick with pancrease stuff from the C drug, and I went to the ER in the big pain time, and they said they were demanding to keep me. I sid NO NO NO!!!! I just have a full round of IVSM, and its dangerous for me to be here! They were upset, but offered NO alternatives, or out patient choices to help me. He really thought he could bully me into staying. NOPE! I went home. my PCP was angry and spoke against vs going. He told me I did the right thing ot RUN RUN

I lasted 2 days at home. I was extremely ill. It was coming from all ends. I reached a point that I was no longer making sense. I was sweaty, confused, peeing on mysefl, and soiled myself. DH found me in bed in speaking nonsense, feverish at 102, curled into the fetal position, and wet from many sources, from sweat to pee. The old lady cat was at the foot of my bed YOWLING! She kept running to get daddy.

I was admitted thru the ER and it took 12 sticks WITH ultra sound to find a vein. I was given dilauded before they even tried to get me off the foor. Zofran, Dilauded, phernergan, are given with great freedroms. I have proven myself to this MD over many years to be trust worthy to this MD. I work hard for a less is more approach. I am normally griping about getting OFF this stuff!

I was very ill when I got here, and speaking out of my head. Thank you for all the prayers, love, hugs, and well wishes. both public and private. its been a long road, but today i am begining to feel half human. I have sat up in a chair for bit, and even had ONE ounce of orange sherbet.

The best gift of all was today I got my very own Pic line! its a double lumen, and its the latest model. No more worries about blood draws, or IV access. My poor little arms are so bruised, swollen, sore. I am TIRED of seeing MDs.

One guy said its bowel, one said bladder, one said MS, one said they want 4 feel of my intesting to be removed. not two in the whole bunch can agree.

I am too sick to go home, and some of these MDS are really scary. Instead of saying " I dont know" they spout twenty dollar words that aint wirth spit! As soon as I can find an exit, I am gone, gone, gone. At least I am more aware 0f my surroundings, and situation.

I will be back in a few days or a week. Love to all.
hope you are feeling better soon! take care!
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Old 04-14-2010, 06:28 PM #25
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My gosh, Dej! I'd avoid the C like the plague! I sure do hope you feel better soon and get to go home. Please keep us in the loop.....we worry about you.
I think it's important to keep a balanced view of things especially when there are people who will make dmd decisions based on experiences of others.

The stats for pancreatic disease as a result of C are a bit vague.
And I'm sure Dej wouldn't mind me saying , but she wasn't taking the med consistently and had recently had a break too. Who knows how these drugs affect us when we don't take them right? What if something goes into overdrive to make up for the dose it missed?

and lastly, I'm only defending C because I'm on it and biased
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Old 04-14-2010, 06:56 PM #26
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still in the hospital. Im still pretty sick. I dont feel well enough to catch up on what I have missed, but will do so when I reach home again.

Please know that my experience was RARE on copaxone. dont let it cause a moments hesitation when trying to decide on a DMD for your own treatments. Copaxone is a great drug and has done wonderful things for wonderful people.

I am feeling the love of all of the well wishes. thanks for that. I promise to catch up when I can.
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Old 04-14-2010, 07:16 PM #27
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Thanks for checking in, Dej. I hope you recover quickly and are home soon. There's really no place like home to make you feel better.
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Old 04-14-2010, 07:17 PM #28
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My only bad experience on C was the 3 times I mustve hit a vein. Wow was it hard to get air in/out of my lungs. The night before I did deep breathing exercises for who knows why. Thank god. I had to lay still as possible, not move, not worry, just get air in and out slowly but surely. My stomach was also in spasm, heart slowed to a crawl but went THUMP..THUMP when it beat. That I dont miss. I still take a shot time to time (maybe 2 per month) when Tysabri isnt cutting it. Hey Dej..I didnt have internet access when I was in hospital! Hope you get out soon.
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Old 04-14-2010, 07:28 PM #29
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Dej, still praying for you for a quick recovery. Have they found out your problem yet, like how to treat it? How is the brain problem you have behaving? I hope you are well soon my dear.

When you get a chance let us know how your DH is handling all this news, okay?
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Old 04-15-2010, 04:03 AM #30
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I had a bad experience on C too, but mine was different and nowhere near as severe as your's. I started fitting and after stopping Copaxone, the fits waned into oblivion.

It's good to hear from you. Sending many healing prayers.
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