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-   -   Where is Dejibo? (https://www.neurotalk.org/multiple-sclerosis/119199-dejibo.html)

pud's friend 04-15-2010 04:46 AM

Quote:

Originally Posted by EddieF (Post 644391)
My only bad experience on C was the 3 times I mustve hit a vein. Wow was it hard to get air in/out of my lungs. .

Do you mind if I ask, how on earth did you hit a vein? Where on earth were you jabbing? :eek:

FinLady 04-15-2010 07:33 AM

Dej, thanks for checking in! Hope you feel better soon! :hug::hug:


Quote:

Originally Posted by EddieF (Post 644391)
My only bad experience on C was the 3 times I mustve hit a vein. Wow was it hard to get air in/out of my lungs. The night before I did deep breathing exercises for who knows why. Thank god. I had to lay still as possible, not move, not worry, just get air in and out slowly but surely. My stomach was also in spasm, heart slowed to a crawl but went THUMP..THUMP when it beat. That I dont miss. I still take a shot time to time (maybe 2 per month) when Tysabri isnt cutting it. Hey Dej..I didnt have internet access when I was in hospital! :) Hope you get out soon.

That almost sounds like an immediate post injection reaction (IPIR). Feels like someone sucker punched ya in the stomach and took all the air out of your lungs. If it ever happens again, don't lay down. Generally makes it worse and causes it to last for a longer period of time. (found that out the hard way). Sitting still and doing the breathing exercises helps a lot.

Dejibo 04-15-2010 10:22 PM

Still in the hospital
 
well, here I sit, STILL in the dadgum hospital.

The pic line is a God send! no more painful sticks, pokes, blood draws, and BS at all hours, with worries of infiltrates, and the constant 3 day deadline. This puppy can stay in for up to one year.

I was bumped up on my diet today, and have been able to eat jello now and tea without regifting it.

My blood work has now all returned to normal status, and there is talk of maybe going home on Monday. I am told I was much sicker than even I thought I was. I guess I have had this whole pancreatitis circle going on for the better part of the year, and with each new attack I created more and more damage to my organ. it had spread into the intestine and into the duodenum. When I went on IVSM it caused a dramatic drop in inflammation in my entire body, and as the IVSM washed out of my system the inflammation returned with a vengance, and a hunger to take me over.

Thank you for all the wonderful thoughts, wishes, prayers, and hugs. you guys rock. I have not backed up to read the past events of the website yet, I am just too sick to pay attention yet. Even once home, it will take me several days or maybe longer to feel well enough to park myself in front of the computer.

***thanks to my friend for typing this for me, while I kicked back and sipped on my tea****

FinLady 04-16-2010 05:15 AM

Dej, glad the bloodwork is improving. Rest up and feel better soon! :hug::hug:

legzzalot 04-16-2010 08:44 AM

Wow Dej. Glad to hear the bloodwork is improving. But sheesh! Your poor body. I hope you feel better soon.

soxmom 04-16-2010 12:31 PM

I hope you feel well enough to go home soon.

:hug:, sox

EddieF 04-16-2010 06:10 PM

Dej of course we hate the fact youre "in" but im so glad you have pic line. I know it would be god send to many of the senior senior citizens in chemo room I watch while getting Ty.

The Copaxone was inj into legs about where the keyboard is resting now, possibly closer to inner thigh. Yes i know theres major artery/veins close by. All i injected was legs for 2 1/2 years. Im paralized from chest down, numb from between collar bone & chest all the way to my toes. Spinal cord's wide open about 1 vertebrate between c6-c7 from slicing it with c7 21yrs ago come June. I'll upload pics one day.

dmplaura 04-16-2010 11:51 PM

Oh my gosh Dej, I got really scared for you just reading all of this!! :(

I hope you're feeling better and I'm so sorry for what you've been through. You don't deserve any of this. :hug:

Dejibo 04-18-2010 03:20 PM

I talked the MD into allowing me a two day trial at home. If I am not better or at least more stable in two days they will put me right back in the place. Pic line is still in place, and the kitties are so happy to see me. The DH is the one who was suffering. He was miserable with me in that place.

Please say prayers that I can stay at home, and not end up back in that place. I MUST be able to demonstrate eating, and NOT giving it back. The MDs are all so very kind, but it feelsso good to be home, even if only for a short while.

Wont see much of me, since I am medicated and beyond nausea. Thanks for the well wishes. If I am forced to return it will be for 14 days bowel rest, on TPN and such. Oh the joy!

SallyC 04-18-2010 07:20 PM

I feel so bad for you.. :(
What do the doctor say is wrong with you?

I hope you can stay home too. :hug::hug:


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