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Old 04-30-2010, 09:45 AM #71
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more HUGSSSSSSSSSSS hoping the tummy settles soon... sorry about the lame nurse comment!! geezzzzzz
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Old 04-30-2010, 09:48 AM #72
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hang in there Dej.........we are praying for you!!!
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Old 04-30-2010, 03:01 PM #73
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Just saw on FB that Dej is out of the hospital. Welcome home!
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Old 04-30-2010, 03:14 PM #74
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I made it home this afternoon. They are still playing guessing games about what really went wrong. the GI folks say its MS. The MS folks say its GI. The medical folks say they are staying out of the fight. It was a loooong month of back and forth.

The test for porphria is negative, so its MS. Can MS cause a tummy to simply stop? depends on whom you ask. I was told that diabetic patients can have this type of neuropathy happen, so...why not MS?

I am keeping down simple easy foods, and while still quite cautious about what I put in there, they deemed it to be enough to survive on. Everyone passing the buck to the next guy now.

My old cat is so happy to have me home. She went blind while I was in the hospital,and has stressed over not having me here. I really felt so horrible to leave her. At 23 she is quite fragile.

Anyway, thanks for the well wishes, and the prayers. I am home. Lets see if I can stay here.
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Old 04-30-2010, 03:51 PM #75
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Welcome home, Dej!
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Old 05-01-2010, 02:56 PM #76
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Dej, I am so glad you are home. Welcome back. I'm glad your old Putty Tat is happy with your return too.

When I had my Colonoscopy, the GI doc said that I don't have Motility in my intestines. Food stays with me longer than normal people. He said it was the MS. He told me this when I woke up after the test.

Also I have Esophagus spasms (oh the fun, not). I was dx'd long ago in the hospital, with a drink I had to swallow slowly while viewed on a stand-up fluoroscope. I had so much pain in the middle of my chest when I ate, or the throat would not let food or liquid go down. I had to spit it out or choke.

So yes, IMO, MS can cause problems from your jaw (TN) to your toes (curl) and anywhere in between. this is just my thoughts I this since you sort of asked .

BTW, I have to eat small amounts of food, no spice, 5 to 6 times a day rather than 3 bigger meals. I have to cut the pieces small, so not to get pain or choke.

I take a Klonopin before meals to relax the spasms. In the hospital I was given Phenobarbital and Belladonna. I don't need them now that I know the problem is MS and not gastritis, GERD, Gallbladder, or indigestion. Just MS spasms at times, and the lack of bowel Motility most of the time.

Food takes forever to move along to the end outlet. The resulting slowness causes painful gas pockets too, because the gas gets trapped.

Be well my dear and come back strong and healthy..
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Old 05-01-2010, 05:30 PM #77
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yes lets keep you home, stay on those liquids and softer choices for foods maybe, and snuggle the cat... and hoping your stuff does not act up more again... since they do not know what the heck it is... hugssss,sarah
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Old 05-01-2010, 06:04 PM #78
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I just hate that when they dont know, they dont say "i dont really know" they just say "its an MS thing." so quick to blame MS for all that ails me that they cant prove. makes me angry.

I am eating soft, small meals. My kitty is thrilled to have me home. I was so worried about her.

Thanks for all the good loving.
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Old 05-01-2010, 06:56 PM #79
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Old 05-01-2010, 07:03 PM #80
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I glad you are a bit better and home at last.

Bless your sweet little kitty cat. he must be stressed too.

Take care what you eat for awhile....I guess MS can do strange things, when your whole body depends on your nervous system, so much.
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