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Old 04-30-2010, 09:26 AM #1
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Default yay! steroids! (actually...ewww...steroids!)

My doctor just prescribed some oral steroids for what's going on this week. (numbness in very important areas we wont mention, pain from the numbness, weakness in legs)

I'm excited, but I'm also annoyed that I have to take the steroids. (there goes my ability to sleep for the next couple of weeks) They taste gross, they cause me problems with things.

I wanna take them, but I dont wanna take them.

This is the third time since last June that I've been Rx some steroids. (june I had the expensive IVSM, in October I had the $5 bottle of oral) Fourth time I've ever had to take steroids. (had a Rx for oral 'roids in 2007 for some vertigo) I'm pretty much assured that I'll have problems in the future from having to take steroids.

The IVSM worked great last summer. (had a vision problem), but in October, the oral did absolutely nothing except for help make the nerve pain go away that was making my arm feel like it was being crushed.

I'm worried that the oral wont do anything for this numbness either, this numbness is a lot worse than the numb hand was. My back hurts, and it feels like my spine is being squeezed down in the low back. I feel like I can barely walk. I HAD to use a grocery cart at the store last night. (stupid kid stole it from me when I was checking out. I made the cashier go get it back for me so I could get to my car) It's causing me other problems I wont go into, but mentioning that problem is probably why my really cool neuro is calling in the Rx for me.

I think I'll take my mom out for breakfast and pick up my steroids. (Mmmm! steroids for breakfast! Yuck!)

I really hate that the MS makes it necessary that I have to take steroids sometimes. This sucks.
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Old 04-30-2010, 09:55 AM #2
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Sorry to hear you're bad enough to require steroids...take lots of cinnamon candy or lemon drops...and a low sodium diet to keep the lbs. off. No more than 2000mg/day while you're on them...
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Old 04-30-2010, 01:14 PM #3
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I had my first dose with breakfast this morning. (took my mom and sister out, well, mom paid)

Instead of my usual french toast and bacon, I had a rather yummy "breakfast banana split". Bananas, blueberries, strawberries and strawberry yogurt...with a bunch of nice and crunchy granola. (Mmmmm!!!) and a bagel. OMG! It was great! (took away the nasty taste of steroid I got from choking down the prednisone)

Now I just have to decide what to have for dinner. Not sure yet.

I only had four hours of sleep last night. Hard to sleep when you're numb. I want to take a nap, but I've got to take my mom to physical therapy today.

I just hope the steroids work. The neurological itching that started today is driving me nuts. Oh, and the fact that all of my clothes except for my bra are really really really uncomfortable.

I want clothing that doesnt make me want to rip my skin off!!

How long before the steroids kick in????
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Old 04-30-2010, 06:23 PM #4
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2000mg/day oral sounds like alot. What do you think that equals i.v. form?

Good luck Erin.
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Old 04-30-2010, 07:13 PM #5
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Hope you are feeling better soon and that the steroids help. My neuro does not prescribe oral steroids for flares. He does not think they help.
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Old 05-01-2010, 12:52 AM #6
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Oh that's a lot! Are you taking a sleeping pill and something to protect your stomach?
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