[Mite]

Hey Everyone,

I have been through probably 10 different doctors, ortho, neuro, you name it, and nobody has an answer :/ .. This has been ongoing for the past year.

My MRI's in december came back with No lesions in the brain or signs of MS. Is it still possible that I DO have MS?? However, My Neurologist thinks that I do not have MS because its not common that tingling is experienced in all the body at once. (but at same time she says everyone is different? lol)

My anxiety is through the roof so thats probably a contributing factor for my symtoms. My symptoms also are very close to hypothyroid minus the weight gain.

- Tingling in both hands from base of palm to finger tips.
- Left side Upper Lip and left Nostril. (very weird)
- Both my feet, (along with some muscle twitching)
- it can travel sometimes to various parts like inside knee, my butt , etc
- my left eye muscle is twitching which is annoying
- my hands and feet tend to be very cold..
- also i feel fatigued. sleep well and wake up tired.


they come and go through out the day and can be simultaneous.

My feet i had a break from them for like 2 months until a week ago when my stress level went through the roof. ( heavy vibrations to my hands caused my hands to flare up so I got stressed out, and then everything piled on)
Its not carpal tunnel for sure.

Waiting on blood test for thyroid and some vitamins.
THanks!

Mite

[Kitty]

Let us know what the tests say when they come back. So many conditions mimic MS that it's hard to dx without ruling out many others first.

Good luck. Many here are undiagnosed but have a barrage of symptoms that their Neuro can't figure out. Those of us with a dx of MS all have different symptoms and experiences with it. It's definitely an "individual" disease.

[Lady]

Hi Mite, Welcome!

Many missing vitamins in the body can cause similar problems, so can anxiety. But when you have any symptoms, you want answers. I don't blame you.

It takes time to get a dx of anything. You probably have to wait in what we call Limboland, until they figure out what is causing your problems.

I hope you find an answer soon. Let us know the test results. Feel free to join us, many here are still in Limbo waiting for a dx. Good luck to you.

[sabimax]

good luck and take care... been undx with tingling pain and many more sxs balance issues etc.. for almost 10 years now... yep nothing shows on tests to be dxed with anything... hugss and good luck, sarah (I take neurontin now as the numbness I get with tingling the pain of the tingling is BAD after the first few years)

[pud's friend]

Welcome Mite. Hope you get the answers you need. hang in there.

[doydie]

There are many, many diagnosis that mimic MS. I'm sure someone here will come along and send you a linc. I would but I don't know how. I do know that at the top of the forum there are many lincs that may answer your question. Different vitamin deficiencies are some fo the things that mimic MS. Good luck. Keep a journal but don't freak out.

[azoyizes]

Hi, and welcome to NT!

I wish you luck in finding answers. The best thing I can recommend to you is to keep a medical journal. I have kept one for years, and it has been a lifesaver to me and a help to my doctors. I have sections for doctor's visits with questions to ask, answers given, tests taken, etc. Keep a current list of all your meds, prescription as well as OTC and supplements. Symptoms. Lab results, MRI results, etc.

Don't give up. Keep questioning and pushing.

[Mite]

Thanks for the responses!

Yes I am in limboland, my friends and family used to think i was crazy! lol Until now symptoms getting worse but fooor sure its directly correlated to anxiety and stress at the moment. Since joining I have been getting alittle better but sometimes reading too many posts doesnt help haha.

I will keep running tests and seeing how things go. I will definitely post my results this week they should be in, I got tested for some vitamins.

As for the journal, I havent started one but I think I should because I often forget what came first, an activity or symptom that may have caused it, or something i ate etc...

Ill stayyy positive and keep everyone updated in the days to come!.

THank you all so much!!

[Mag23]

Cold fingers and toes? Do they look white and/or blue? I have Raynaud's disease and my fingers and toes are constantly like ice. Even on a summer day. I have to wear gloves and boots at work to keep them warm since the office keeps the air conditioning on. Very sharp pins and needles and it can take hours before I get feeling in them again. I have tests I still need to get done because almost all of my symptoms scream MS but there are so many other things it could be. Stress/anxiety causes flare ups with Raynaud's.

[NurseNancy]

welcome to NT,

you're right about stress; it can really affect your body. try to do whatever you can to decrease it.
when i was going thru the dx (diagnosis) process (& thru my breast Ca) i decided to just take 1 day at a time. it doesn't do any good to worry about the future. you can only deal with what's in front of you for a day.

i agree with the journal. it will help you and the dr to evaluate your sx's (symptoms). good luck and keep us posted.