haha then there is ME opposite, each other specialist from ENT, Neuro pysch, PT, Opthamologist all over the years have asked if I have been tested for MS.... then due to clear MRIs neuros say nope... but do not have an answer for what it is then.... hugss,sarah

Then I come along and have MS.. plus a few other auto-immune diseases besides the MS. :(

It is not unusual to have more than one, or even something else in addition to MS. MS surely is enough for anyone, but that doesn't mean we can't add up more as time goes by.

In 1977-78 when I first presented with Myoclonic tremors and jerks they thought I had Wilson's disease. I was tested and tested. It is a hereditary disease, but glad I didn't have it. I had to have a Liver Biopsy too, not fun. :(

I have too much Copper, 24 hr collection of urine, and in the blood, and too low Ceruloplasmin in the blood. I didn't have the brown/gold eye circle (ring) that a specialist in the field at the Grand Rounds checked for with a split lamp.

He flew in to give a presentation on Wilson's. That's why so many specialists were there.

Hey, back then they had no clue. Had all the tests and the room of Grand rounds doctors from local, and many countries, discussed me. Had me demonstrate my tremors which were very odd.

Other diseases were mentioned but that one stood out in my mind until this day. I don't have it, yet they said avoid eating too much foods with copper in it.:confused:

Every eye doctor I go to, I have them look in my eyes for that sign. Still good. :) Phew!

Since my DX, I kept hearing how I had some symptoms that were "atypical" of MS - but my leisons are and they ruled other stuff out. Been tested for everything under the sun, even after DX. Then lo and behold, they added Fibro to my mix. Knocked away some of those "unusual" symptoms into that bread basket. :rolleyes: Still have things that make one go "hmmm." but learning to deal with it day by day. :)

I had a hemicolectomy 2 years ago for a bowel tumor and had a paralytic ileus afterwards, for more than 2 weeks.

Since then I've moved states and when my new GP (family medicine practitioner/internist) got the post-op information from my surgeon, he (the surgeon) had put the bowel obstruction entirely down to MS, and not as a post operative complication, per se.

That was news to me.

I was seeing a neuro in Miami (for siezures) who said he didn't think I had MS. This was about 6 years after I was dx'ed in Toledo. I didn't tell the guy about the other neuro I was seeing at the time (MS specialist).

I tried to see a neuro a couple years ago here in Houston to get some help with the neuropathy pain I'm experiencing. I went to 2 of them. Neither one would believe I had MS. Neither one of them would look at my MRI films or the radiologist reports either. Idiots. I do have an MS dx in Houston from 2003.

Tom

its nice to know I am not alone. I just hate that the first thing they jump to it one of two.

1. its an MS thing, get used to it, or...
2. hmm...maybe you dont have MS, let me test you for...

When is it ok to just have MS? Even my friends were on the bandwagon for a bit. maybe its celiac! or maybe its a vit def, or maybe ...fill in the blank. sheesh!

I guess because MS is so transient, and invisible to most its hard to let me have it.