[Dejibo]

I just came off a looong hospital stay, and one of the first things they jumped to was

1. its an MS thing
2. Maybe you dont have MS. maybe you have another disease.

They went to great lengths to disprove Porphyria. They were quite convinced that I had been given a dx of MS when I didnt need it.

Not long ago, I had weird other sx and the rhumy told me she believed me to be mis-diagnosed. She thought me to have Sjoghrens and not MS.

Not long before that I was told by another specialist that they thought me to have lupus or lyme, not MS

I guess I dont fit perfectly into the MS catagory. Who does?

How many of you have been approached by other specialists with the suspicion of a mis-diagnosis? I have found it kinda common in my world for others to latch on to disprove my MS diagnoisis.

They fail each and every time, and they keep coming up with the same conclusion. "oh, you have MS, and...all of these weird flare up things, well...its an MS thing." They put me through worry, tests, and concerns, only to dump it all back on an MS thing.

Im so tired of this. When will they just allow me to have MS? Even my friends keep saying "maybe you have celiac? or maybe you have this or that!" Sheesh! When is it ok, to just have MS? Why is it so important to everyone that I keep looking for other things it may be?

Does anyone else have this happen in their world?