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barb02 05-13-2010 06:18 PM

I really do not have foot drop -- more like leg drag. My problem is stiffness and pain. Maybe that is why he does not think it will help. My neuro mentioned that there was a program to help with costs too. I assumed that I would not be eligible. I am not going to give up although I may have to wait until it has been on the market for six months.

Lady 05-13-2010 11:19 PM

Barb, I am so happy for you. No new lesions, and a good clinical exam. That's wonderful. :hug:

I had the same report as you in March and it made me happy too. :) I can't walk on my heels very well either, I must practice, practice makes almost perfect. :D

I fall backward if trying to walk on my heels. But I can stand with my feet together and close my eyes and not twitch, get a head tremor, or fall over anymore.

When I am tired, my left leg drags or swings out. Not foot drop either, just it gets wacky when I am fatigued. I know it's nap time then.

My calves get spasticity after walking, because I don't do that too much other than in the house. One store and I am done in. But I have to get out sometime.

I hope your ins comes through for you for Ampyra. My ins says, no new drug for 1 year out of clinical trials. I hope the co-pay is not high for you. I haven't heard much about the drug or it's cost.

karousel 05-14-2010 06:19 AM

Love to hear your good news!!

SandyC 05-15-2010 01:07 PM

Great news Barb!!!!! When Jim was dx'd with foot drop his leg dragged too. So bad he went through a new pair of shoes every month. The military couldn't keep up while he was awaiting discharge. :)

dmplaura 05-17-2010 05:56 PM

Quote:

Originally Posted by barb02 (Post 654326)
My neuro did mention the new oral meds that have not been approved by the FDA yet. He also said that I would of course want to try one of them. But a few minutes later he mentioned that I have been stable with out being on a DMD. I think he is a bit unsure of what to advise. I'll cross that road whenever they are approved.;)

Dejibo -- Are you back on copaxone?

Your news: CONGRATS!!! This is awesome barb :hug:

As for your choice to go DMD free.. my neuro advised me to be on a DMD, however I said no way, I know my body, I know my diet's controlling this crappy disease. For me, it was the right choice. For him as the neurologist, it was playing the roulette with my disease, but I think he knows deep down what you said... mild. My GP used the mild word with me. Let's hope we both remain mild-ies ;)! :hug:


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