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Old 05-13-2010, 09:56 AM #1
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Default MRI Report
Got a good report from my neuro – no new lesions !!! So that is two years without any new lesions. I also did well on my physical exam. I only thing I could not do was walk on my heels. He actually used the word mild when going over my MRI with me. I am going to slowly taper down the baclofen I have been taking from 6 a day to 3 a day as it does not seem to really help with my spasticity. Then he may try a different one. He is also going to try to get approval for ampyra. He said that my insurance will typically not approve a new drug until it has been on the market for 6 month. He also seemed skeptical that it will help me, but he said he was willing to have me try it for a few months if he can get approval.
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Old 05-13-2010, 10:14 AM #2
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Yay...I like good news!
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Old 05-13-2010, 10:40 AM #3
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Awesome, Barb! Congratulations on 2 yrs with no new lesions. That is such exciting news and I hope that continues for you.

Hopefully, the insurance will approve the ampyra and you can begin taking that.
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Old 05-13-2010, 11:23 AM #4
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That is great news, Barb!!! Yahoo!!!
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Old 05-13-2010, 11:32 AM #5
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awesome! I know you were so worried, because you cant handle any of the common DMDs and I am so pleased that you remain stable. Rock on!
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Old 05-13-2010, 01:34 PM #6
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WTG, Barb.
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Old 05-13-2010, 01:52 PM #7
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My neuro did mention the new oral meds that have not been approved by the FDA yet. He also said that I would of course want to try one of them. But a few minutes later he mentioned that I have been stable with out being on a DMD. I think he is a bit unsure of what to advise. I'll cross that road whenever they are approved.

Dejibo -- Are you back on copaxone?
Last edited by barb02; 05-13-2010 at 02:31 PM. Reason: typos
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Old 05-13-2010, 02:24 PM #8
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Yay Barb!!! So happy for no new lesions.
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Old 05-13-2010, 03:37 PM #9
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Woo hoo Barb!!
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Old 05-13-2010, 04:58 PM #10
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Really glad to read the good news, Barb...
I've been reading about people's experience on Ampyra on the NMSS site on Facebook...almost everyone has seen improvement in their foot drop as well as tingling/numbness lessening, cognition improvement and vision improvement. My neuro said he saw all of these in patients in clinical trials through him.
So maybe you'll see improvement, too. by the way, the drug company is helping patients defray the costs...my neuro had me fill out a form that is sent to the drug company (at least I think that's where it went). It then goes to a coordinator who works with the insurance company to figure out how much they'll chip in...at least that's what I've been told.
Don't give up on trying this drug...
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