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-   -   The age of onset and prognosis (https://www.neurotalk.org/multiple-sclerosis/122657-age-onset-prognosis.html)

SandyC 05-24-2010 06:21 PM

Pffft, Jim was dx'd at age 22 and his poop went down the drain fast! So, age has nothing to do with it in my opinion. As a matter of fact, has that lady considered aging may have something to do with some symptoms and it's not always ms? :p

Erin524 05-24-2010 11:21 PM

Quote:

Originally Posted by lefthanded (Post 657591)

My question of the day: How do you respond when people tell you they hope you will 'get well" or be "feeling better?"

I want to give them a headsmack and tell them that I hope they'll "get smarter" someday.

FinLady 05-25-2010 09:22 AM

Quote:

Originally Posted by lefthanded (Post 657591)


My question of the day: How do you respond when people tell you they hope you will 'get well" or be "feeling better?"


The feeling better doesn't bother me. My symptoms are so up and down, I do have good days and bad. I always cross my fingers for a good day.

The get well part - I try not to say "I will, when they find a cure and a way to repair the damage." Though if the tone of the person was not nice, I'd say it anyways. :D

barb02 05-25-2010 10:50 AM

It doesn't bother me when people say they hope I am feeling better or that I look good. I would have probably said the same thing prior to my dx and learning about MS. Occasionally I do say well "it is better to look good than feel good:)"

Debbie D 05-25-2010 04:57 PM

I say "thank you." I truly don't have enough energy to think of a negative or sarcastic comeback.

NurseNancy 05-26-2010 04:07 PM

i havn't read or been told that.
i was dx'd when i was 53. i'm relatively stable. had some progression but it could be worse.

volada 06-05-2010 08:04 AM

found this youtube video refreshing...SHIFTING MS
 
i've read different research about age of onset/disability...progression....but can't stress...have to just deal and when i feel down/out about the yuckiness...hope for a better next day...

http://www.youtube.com/watch?v=59HQ6...layer_embedded

SallyC 06-05-2010 11:08 AM

Thanks Volada....Good video!!:hug:


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