I had something totally different, yet called the same.:confused:

In the beginning of my dxing, limboland, journey, I had many EEG's in the hospital. They said I had myoclonic seizures and myoclonic jerks, with an odd tremor in many locations. Eye, tongue, hands, etc.

On Klonopin from the beginning for these, after trying many other meds. This worked for me. I still take it 3 times a day for 30 years now. I only get a myoclonic jerk when in relapse now, no myoclonic seizures since near the end of Limboland in 1980.

Klonopin has anti-seizure and anti-tremor properties too. I hope some of this info helps. :)

I will look for the site I found on this and add it later.

Gee, I just found out hiccups are myoclonic jerks, hmm

Edited to add:
http://en.wikipedia.org/wiki/Myoclonus

thanks....
I too have myoclonic jerks, and muscles twitches......thethey are common is both MS and seizures!!

anyone with auras?? I woke up the other night to a colorful light show...I was told that auras are actually simple partial seizures.

They are daisy, my mom has those sometimes. Jim had seizures 7 years ago but we are now convinced it was drug related since he was on neurontin and was taken off it without weaning. He stayed on seizure meds for some time just to be sure. He's now seizure free and seizure med free. :hug:

I have had two grand mal seizures, one in 2002, the 2nd in 2009. Both times I dislocated my left shoulder. My EEG's have all come back normal. Last year, after the seizure, I was dx'ed as having epilepsy as a component of MS.

Currently I am taking Keppra because my neuro says it focuses more on controlling seizures then other meds. Previously I'd been on Trileptal and Dilantin for seizures. Trileptal was also able to give me a bit of releif for sensory sx in my hands, I miss that.

daisy.girl I'm sorry you are having to deal with the seizures, as if, MS isn't enough of a challenge. Be sure and find a good doctor and get yourself on the anti-seizure that is best for you. Good luck to you.

:Wave-Hello: Hi Beth, nice to hear from you..:hug:

:Off-Topic:Hi Sally :Wave-Hello: So nice to be back and remembered. :hug:
~Beth~

Hi Beth, welcome back. :) I am not sure if I remember you, but I hope you will continue to Join us.

You had two seizures and yet your EEG's came back normal?

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Hi again daisy.girl, Could the aura's be from migraine? Some migraine has silent pain. Actually called "Silent Migraines.: Flashing lights or aura's yet no headache.

It is so hard to decide what is MS related, or related to meds or other diseases/ disorders. It's like a big puzzle and we the people with them, have to try to decide which symptom belongs to what issue. (sigh)

Hi....
I went to the neuro yesterday. He told me I have epilepsy/seizures, happens with MS.
He said my seizures are coming from my temporal, parietal and frontal lobes. And...Yes, it is very common to have normal EEG and still have seizures. He upped my topamax :(
I think I hate the meds more than I hate any of these terrible diseases!! but then again, no diseases no med!!!

One of my early symps was sitting down and getting a flash then almost fainting. my head would fall but I would catch it. The last time it was so scary that I knew something was wrong..hence I went through the MS proccess. I've had the jerking legs and arms too.

Is your Doc still trying to figure it out?....

thanks for your reply eric....I was dx with MS in Jan. I knew I had been having zoning out/staring spells so the neuro ordered an EEG. My seizures have increased to night time waking light shows and occasionally jerks and twitches during the day too.