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-   -   I just cant sleep! (https://www.neurotalk.org/multiple-sclerosis/123726-cant-sleep.html)

EricP 06-06-2010 11:15 PM

Huggs, Dej.. I have been through this recently, because I just worry and think about things when I should be sleeping. Many nights of not sleeping until early morning.
Recently I've become more relaxed about everything and my sleep habits reflect it.... I sleep a ton better now keeping busy in the day and not worrying about everything.

NeuroNixed Craig 06-06-2010 11:32 PM

Always be very careful in stopping any meds your are Rx'd. Many, including those we are discussing, not only can you build a tolerance but stopping without titrating down may cause severe withdraw affects.

Check your meds to determine whether simply stopping them will not cause more problems than taking them and titrating down. If you don't wish to go through the hassle of communicating with your PCP, I've found my local Walgreen's pharmacists to be very helpful.

Learned about this the hard way. So, learn from me.

mamagoo 06-06-2010 11:37 PM

I can certainly understand the not being able to sleep.. my leg is going nuts tonight and is only worse if I lay down. Alarm for getting up for work goes off at 0345 so should be in bed now sleeping like a baby but..cant sleep if leg is jerking around

Dejibo 06-07-2010 07:31 AM

I slept last night, but it was fitful and full of wild dreams, which is worse than no sleep. I hate sleep that is too much like work. my god! bizarre.

My family is acting out again, so the weird dreams were not a surprise, but i hate that I finally got sleep and wasted it. I woke up stressed and upset.

I am being careful on my meds. I cut back to the lowest dose and then every other day and then every third day and then stopped. I am not taking many things now unless I need them. its no longer a automatic to take things to prevent things.

The copaxone also keeps me awake. When I stop taking it, I sleep. I go back on it, I dont sleep. its bad if I take it past 12 noon. So, I make sure to get that 8am shot in there.

Thanks for all the love and advice. its horrible to see I am not alone. Im sorry others are suffering too. :grouphug:

Erin524 06-07-2010 09:52 AM

I fell asleep around 4am. I was sleeping great, the dream wasnt super weird...things were going swimmingly....

then the SID (Sanitation Improvement District) decided to dump a few thousand tons of rock into the creek that runs by the end of my yard. :eek::mad:

I thought we were having an earthquake, or that someone had hit the house a few times with a really big car. Or both. (it was really really loud!)

They're fixing the pipe that feeds water into the creek. (it was starting to fall down into the creek) It was something that has to be done, but why do they have to do the noisy stuff so early in the day? (it was almost 9am when they dumped the rock. That's early for me. It's now almost 10am)

Now they're back there with a big scoop (very loudly) arranging the rock to hold up the pipe.

I was going to get up at 1130am. I guess I wont get to sleep late(r). I'm soooo tired now. I've had really bad fatigue this past week...now I've only gotten about 4 1/2 hours of sleep. (I feel more numb when I dont get enough sleep)

I think I'll attempt to sleep some more. Hopefully they wont have to dump any more loud rocks into the creek.

NeuroNixed Craig 06-07-2010 10:33 AM

OK! I want to play too. I took .025mg of Clorazepam, an Ambien CR, and earlier a strong pain pill. Did they work? "NOT!" I totaled all of 4 hours sleep last night. Thus, I humbly maintain my "Crappy" feeling.

My PCP warned me that with this type of neurological disease there really isn't too much they can do without really knocking me out. What kind of life would that be? My wife is amazed! I guess because she falls asleep just from holding a Benedryl package. LOL!

I refuse to risk further by taking any more meds or even upping the dosage, allowed by my doctor. I will simply go back to the "just go with the flow" way of life. After all, why should I even attempt to be "normal" now and at this time of my life. I've always been, "abbynormal." <BG>

Erin524 06-07-2010 11:24 AM

It sucks to be abbynormal doesnt it?

I can hardly ever sleep when I want to. But I can fall asleep when I dont want to.

EddieF 06-08-2010 07:35 PM

LDN is keeping me from good nights sleep to where I hardly take it. See neuro Friday. 1 ibuprofen used to do it for me. Ive been swimming in pool and figured that would do it since im so tired at night I cant do my handgripper and triceps in bed like I usually do till I pass out watching tv. WIll do that tonight even though I swam and didnt sleep for --- last night.

Exercise! I bought a under-the-desk bike/pedal thingy off amazon and its great. I have it on table since im a paraplegic and crank away. Has calorie/distance/timer too :) Magnatrainer extended range. Reccomend it to everyone its great.


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