advertisement
Reply
 
Thread Tools Display Modes
Old 06-05-2010, 08:07 AM #11
Debbie D's Avatar
Debbie D Debbie D is offline
Elder
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Debbie D Debbie D is offline
Elder
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Default

I see the same neuro as Wiz...at a recent lecture, he discussed the theory out there that the immune system might not in fact be attacking the myelin...that the immune cells go in after whatever causes the damage to clean it up.
He still thinks we'll figure out what actually causes the disease, and has hopes that a cure will be found in our lifetime.

This is an interesting thread...I look forward to more posts as I ruminate on this...
__________________
Instant Karma's gonna get you-gonna knock you right in the head...John Lennon
Debbie D is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (06-05-2010), SallyC (06-05-2010)

advertisement
Old 06-05-2010, 09:36 AM #12
SandyC's Avatar
SandyC SandyC is offline
Wise Elder
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
SandyC SandyC is offline
Wise Elder
SandyC's Avatar
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
Default

Jim couldn't take A, B or C but B made a comeback two years ago. Is it working? Who the heck knows, but he feels good and has no lesions.
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt
SandyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Debbie D (06-05-2010), ewizabeth (06-05-2010), SallyC (06-05-2010)
Old 06-05-2010, 09:39 AM #13
ewizabeth's Avatar
ewizabeth ewizabeth is offline
Elder
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
ewizabeth ewizabeth is offline
Elder
ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
Default

I should add that the DMD's cause symptoms for all of us, and they seem to have an opposite effect for some of us. Rebif was horrible for me. It stopped the MS symptoms but made my life he|| in worse ways. Copaxone happens to work for me (knock on wood) and I'm fortunate for that (even though I always have itchy bumps.)

But we need to look at the underlying reasons for that article since it's closely related to their universal healthcare and the economy in that country.
__________________
Wiz

Turn Left at the next election.
.


RRMS DX 01/28/03 Started Copaxone again on 12/09/09
ewizabeth is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
agate (06-06-2010), barb02 (06-05-2010), Debbie D (06-05-2010), Dejibo (06-06-2010), SallyC (06-05-2010), SandyC (06-05-2010)
Old 06-06-2010, 07:28 AM #14
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

I am so close to laying down the needles.

Betaseron caused my liver enzymes to go crazy.
Cant take rebif, or Avonex because they are interferon
Tysabri is also an interferon based treatment

Copaxone makes me feel exhausted, and yet wont let me sleep. I am tired of the night sweats, the lumps, the crazyness! I think I am better off bareback.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
agate (06-06-2010), Lady (06-06-2010), SallyC (06-06-2010)
Old 06-06-2010, 12:09 PM #15
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Quality of Life, Dej..
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (06-06-2010)
Old 06-06-2010, 06:02 PM #16
Riverwild's Avatar
Riverwild Riverwild is offline
Magnate
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Default

This study was commissioned because patients wanted NICE to pay for Tysabri along with other DMDs. The EU refuses to pay for drugs with low efficacy and forces people to use the most efficacious drug by not paying for lesser efficacy drugs.

Guess what they are paying for?
Tysabri.
I believe they settled on paying for Betaseron in addition to Tysabri and they may be paying for the other DMDs still, but the whole thing started with them not wanting to pay for Tysabri.

This study is now being used on the chefartzfrau web blog of the man who's wife died from PML in Germany, as a negative about Tysabri. I'm not sure if he understands the irony of what he has posted.

FYI Dej, Tysabri is not an interferon based treatment. It is a humanized monoclonal antibody.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
Riverwild is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (06-06-2010), ewizabeth (06-06-2010), SallyC (06-06-2010), SandyC (06-06-2010), shayna (06-09-2010)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
To work or not to work? Mr Bump Traumatic Brain Injury and Post Concussion Syndrome 23 01-10-2010 10:43 AM
Switching DMDs FinLady Multiple Sclerosis 6 04-04-2009 11:54 AM
Wonder if this will work... #162 Abbie Survivors of Suicide 31 01-04-2009 06:15 PM
Work, inability to work "productively" and disability... snoodles Multiple Sclerosis 9 03-17-2008 12:09 AM
Are We Happy With Our MS DMDs SallyC Multiple Sclerosis 44 05-27-2007 08:49 PM


All times are GMT -5. The time now is 02:37 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.