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#11 | |||
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Elder
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I see the same neuro as Wiz...at a recent lecture, he discussed the theory out there that the immune system might not in fact be attacking the myelin...that the immune cells go in after whatever causes the damage to clean it up.
He still thinks we'll figure out what actually causes the disease, and has hopes that a cure will be found in our lifetime. This is an interesting thread...I look forward to more posts as I ruminate on this...
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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#12 | |||
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Wise Elder
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Jim couldn't take A, B or C but B made a comeback two years ago. Is it working? Who the heck knows, but he feels good and has no lesions.
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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#13 | |||
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Elder
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I should add that the DMD's cause symptoms for all of us, and they seem to have an opposite effect for some of us. Rebif was horrible for me. It stopped the MS symptoms but made my life he|| in worse ways. Copaxone happens to work for me (knock on wood) and I'm fortunate for that (even though I always have itchy bumps.)
But we need to look at the underlying reasons for that article since it's closely related to their universal healthcare and the economy in that country.
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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#14 | |||
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Elder
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I am so close to laying down the needles.
Betaseron caused my liver enzymes to go crazy. Cant take rebif, or Avonex because they are interferon Tysabri is also an interferon based treatment Copaxone makes me feel exhausted, and yet wont let me sleep. I am tired of the night sweats, the lumps, the crazyness! I think I am better off bareback. ![]()
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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#15 | |||
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In Remembrance
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Quality of Life, Dej..
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | Dejibo (06-06-2010) |
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#16 | |||
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Magnate
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This study was commissioned because patients wanted NICE to pay for Tysabri along with other DMDs. The EU refuses to pay for drugs with low efficacy and forces people to use the most efficacious drug by not paying for lesser efficacy drugs.
Guess what they are paying for? Tysabri. I believe they settled on paying for Betaseron in addition to Tysabri and they may be paying for the other DMDs still, but the whole thing started with them not wanting to pay for Tysabri. This study is now being used on the chefartzfrau web blog of the man who's wife died from PML in Germany, as a negative about Tysabri. I'm not sure if he understands the irony of what he has posted. FYI Dej, Tysabri is not an interferon based treatment. It is a humanized monoclonal antibody.
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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