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Old 06-21-2010, 10:44 AM #1
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FinLady FinLady is offline
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Join Date: Jan 2008
Location: Raised NY, Live OH
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FinLady FinLady is offline
Grand Magnate
FinLady's Avatar
 
Join Date: Jan 2008
Location: Raised NY, Live OH
Posts: 3,060
15 yr Member
Default Banging my head

At least I feel like it right now, LOL!

Tried copax, tried Rebif, and when I told my old neuro that I wasn't going to take Tysabri - I was transferred to our local MS center. Today was my appointment with the head dude of neurology out of the partnered hospital.

This now makes MS doctor number 2 to tell me that my symptoms are atypical of MS. Yes, I have leisons in both brain and spine. But never had active ones under contrast no matter how new they were; presentations during exam are not in line with MS problems, etc. etc.

So going for another round of evoked potentials and lending blood for many tests that I have had normal results to in the past. Am I willing to admit my duck looks more like a goose sometimes? Sure. Would I rather he be thorough? Absolutely!! But going through this again drives me bonkers.
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Dx'd MS 2007, Fibro 2009
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