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06-21-2010, 10:44 AM | #1 | |||
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Grand Magnate
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At least I feel like it right now, LOL!
Tried copax, tried Rebif, and when I told my old neuro that I wasn't going to take Tysabri - I was transferred to our local MS center. Today was my appointment with the head dude of neurology out of the partnered hospital. This now makes MS doctor number 2 to tell me that my symptoms are atypical of MS. Yes, I have leisons in both brain and spine. But never had active ones under contrast no matter how new they were; presentations during exam are not in line with MS problems, etc. etc. So going for another round of evoked potentials and lending blood for many tests that I have had normal results to in the past. Am I willing to admit my duck looks more like a goose sometimes? Sure. Would I rather he be thorough? Absolutely!! But going through this again drives me bonkers.
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Strength comes in all types of packages, even those you don't expect Dx'd MS 2007, Fibro 2009 |
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06-21-2010, 01:52 PM | #2 | |||
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Elder
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I wish you could get a telegram from above stating what exactly is going on with you...an enemy known is a weaker one!!
Keep on plugging away, Jenn...
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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"Thanks for this!" says: | FinLady (06-21-2010) |
06-21-2010, 03:10 PM | #3 | |||
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Grand Magnate
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I'll keep on keeping on for sure. Thursday is when I go for my Visual and Auditory evoked potentials to see if anything is going on that they can measure.
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Strength comes in all types of packages, even those you don't expect Dx'd MS 2007, Fibro 2009 |
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"Thanks for this!" says: | barb02 (06-21-2010) |
06-21-2010, 03:32 PM | #4 | |||
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Grand Magnate
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Hang in there! I have never had either one of the above mentioned tests.
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"Thanks for this!" says: | FinLady (06-21-2010) |
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