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Old 06-21-2010, 10:44 AM #1
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Default Banging my head

At least I feel like it right now, LOL!

Tried copax, tried Rebif, and when I told my old neuro that I wasn't going to take Tysabri - I was transferred to our local MS center. Today was my appointment with the head dude of neurology out of the partnered hospital.

This now makes MS doctor number 2 to tell me that my symptoms are atypical of MS. Yes, I have leisons in both brain and spine. But never had active ones under contrast no matter how new they were; presentations during exam are not in line with MS problems, etc. etc.

So going for another round of evoked potentials and lending blood for many tests that I have had normal results to in the past. Am I willing to admit my duck looks more like a goose sometimes? Sure. Would I rather he be thorough? Absolutely!! But going through this again drives me bonkers.
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Old 06-21-2010, 01:52 PM #2
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I wish you could get a telegram from above stating what exactly is going on with you...an enemy known is a weaker one!!

Keep on plugging away, Jenn...
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Old 06-21-2010, 03:10 PM #3
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I'll keep on keeping on for sure. Thursday is when I go for my Visual and Auditory evoked potentials to see if anything is going on that they can measure.
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Old 06-21-2010, 03:32 PM #4
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Hang in there! I have never had either one of the above mentioned tests.
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