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Old 07-23-2010, 09:42 AM #11
coffeegirl coffeegirl is offline
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coffeegirl coffeegirl is offline
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Sorry for my long horrible vent the other day. My nerves are completely shot. My DH now is starting to realize that something is severely wrong with me after my visit with the neurologist yesterday.

The neuro told me he thinks I have MG because I failed some of the physical exams he did and told him some symptoms that are related to it. He said that because my MRI in November was clear- there is no relative to MS. So he is doing tests for MG. If they come back neg. I'm not sure what he will do with me. Probably tell me it is all in my head.

As far as the vertigo and nausea- he told me he is going to send me to a dizzy clinic and vertigo specialist. However, I looked up that clinic and basically they do the same thing that the specialist I saw a few weeks ago does along with the psychial therapist who treats vestibular therapy that I'm getting treatment for. It does not make any sense. Very confused. Very upset.

I'm hoping the test come back positive. If not, I'm basically in square one again and in a very hopless situation. There will be nothing for me to do.

Just severely frustrated. I tried talking to my family about this. They really could care less. It really hurts. No one gets this at all. It is hard enough that my DH just got on the bus with it. And he is actually thinking I'm going to be able to go on a golf outing tonight! LOL Yeah- right! I can barely walk up and down the stairs without falling. Hmm... Not sure how this will turn out golfing. My ribs are so bruised I can't lay on them at night move certan ways.

Thank you for listening.
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Old 07-23-2010, 11:44 AM #12
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tkrik tkrik is offline
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I'm so sorry for all that you are going through. It's bad enough to be in pain and not feeling well and then to throw in a lack of support. UGH!

I hope the neuro gets to the bottom of this. DD18 gets vertigo, numbness, and vision issues from her migraines. Currently, she is doing well. When they act up, it's been a year since she had one, she takes her meclazine and valium and usually bounces back in a few days. They did not recommend vestibular therapy for her as the cause of her vertigo was migraines.


There is an MG forum on NT that may give some insight to your situation as well. My DBF's mom has it. Once she started medication she did much better. Occasionally she has some issues but not like they were.

Hang in there and let us know how you are doing.
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