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NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)
-   -   CCSVI Pre Post Videos (https://www.neurotalk.org/multiple-sclerosis/128927-ccsvi-pre-post-videos.html)

kicker 07-29-2010 10:05 PM
I am hopeful but with a degree of caution, The best thing I've heard is 2 I know who had procedure but with no success but they are still active in presenting information to others. I'm waiting to hear what Aarcyn says.:rolleyes::D

dmplaura 07-30-2010 08:48 PM
Sorry if this is a repeat, but:

http://www.youtube.com/watch?v=E8drm...2c&feature=sub

Kerri and Kylie, both Aussies and both post CCSVI! :)

EddieF 11-28-2011 05:27 PM
http://www.youtube.com/watch?v=iu2xN...eature=related

Time for me to get back into CCSVI research. My good, left hand's sensory loss has progressed in 2011. Most light touch is gone except index finger & thumb. I exercised my rear off this yr. Swam 2,100 laps 14x28 pool.
I'm also tired of people I know being hosptalized from MS.

jacksonsmommy 12-01-2011 08:25 PM
Quote:
Originally Posted by sw8689 (Post 680146)

Regardless, once permanent damage is done, axions are cut, that is it normally, some myelin will repair, some won't, so full recovery, back to the old days I believe is going to be a rare occurrence. However, if the recovery is 20-30-50%, or it is caught in the early stages that is where I believe our miracles will be.
This.

I had my procedure done May 31, 2010. It dramatically improved my life but I am not cured. I still have MS, I still have problems, but I did see real and lasting improvments. Just for the fatigue reduction alone it was well worth it. In the 1.5 years since the treatment I have not had any progression, just flare ups of pre-existing symptoms.

SallyC 12-01-2011 08:33 PM
Quote:
Originally Posted by jacksonsmommy (Post 829175)
This.

I had my procedure done May 31, 2010. It dramatically improved my life but I am not cured. I still have MS, I still have problems, but I did see real and lasting improvments. Just for the fatigue reduction alone it was well worth it. In the 1.5 years since the treatment I have not had any progression, just flare ups of pre-existing symptoms.
That is so terrific.....WhooooHooooo!!!!!:hug:


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