The not really getting my breath thing seems to be sensory to me. (I've been trying to figure out what's bugging me with it)

I hate feeling like there's no breeze on my face, and with the numbness around my lips, it just feels like the air isnt moving around much. I have my ceiling fan on high and an electric tower fan on the floor and it feels a lot better.

Only problem is, that the numbness is now also up in my eye (my eyeball feels just like it does when the eye doctor puts numbing drops in my eyes) and it feels dry too, no matter what I do (altho, it's watering like crazy at the same time) The air from the fans feels like it's drying out my eyes.

Geeze, the MS doesnt just suck like heck, it's driving me batty!!! I think the MS trolls in my head must be all be arguing with themselves on just how they're going to try to drive me nuts. They cant decide which method is best so they're using all of them. (my right leg is numb and my left leg hurts this weekend....tell them to leave me alone for a few months or years!)

I'm feeling so sorry for you. I know what you mean about needing to feel a breeze on your face.
I don't have an answer to help. But just wanted to send you hugs!

Erin it seems you do get many of the odd MS symptoms. If your eye in involved maybe check with the eye doctor. It might be an infection or another problem. I Hope it all goes away.

mark2be, Welcome to Neuro Talk. We love new people.

You did post very well. It will get easier as you post more, so don't stop. You can introduce yourself on the MS main menu introduction sticky, if you have a Neuro issue or MS.

If you have another problem or disease, you can go to the main menu by going to the top left side and click on" Neuro talk Support groups."

There are many forums here. If you need help let us know.
Nice to meet you.

I went to the eye doctor today. He told me that my eyes are in great shape. With correction I have 20/20 vision. (wow!) Also said my optic nerves look perfectly healthy for someone who's had a couple of episodes of optic neuritis. Said not many people who've had ON get that kind of improvement. Hope I get to hold onto that for awhile!

Only thing he told me to do different with my eyes was to buy this ointment (over the counter stuff) to put on my numb eye when I sleep so that my eye wont dry out and scratch up my cornea while I'm asleep. (sometimes with numbness, apparently your eye can open up while you're asleep without you knowing about it)

I need to go to the pharmacy tomorrow and get the ointment. We were having a huge thunderstorm earlier with baseball sized hail (most of it was pea, but there were a few odd baseballs falling down), so I decided I could wait on buying the eye goo.


I've noticed that I seem to get the freakishly bizarre symptoms. That figures that I'd get the freaky form of MS. The one that makes people look at you and go "What?!?" when you describe your symptoms to them...and then they look at you with a hairy eyeball every time they see you after that.

It makes me think that I must have some seriously twisted MS trolls in my head that have some sadistic streak in what symptoms they throw at me.

I found out over the weekend that the steroids I threw at the flare that I've been arguing with all summer seems to be doing something to my hair. I've had hair everywhere on the floor whenever I wash it, and the guy who's been cutting my hair since I was 9yrs old told me that he's saw a change in my hair from the last time I saw him. (saw him in April about 2wks before my flare hit me)

Either the steroids damaged my hair, or the numbness that's currently affecting my scalp is doing something to it. (I think it's the 'roids, personally)

So, not only is the MS causing me to be uncomfortable and driving me nuts, the medications that I've used to make the symptoms back off is now screwing up my hair. Not cool!