Well I have invented an ice chair... pillow case that has been converted to hold 4 gallon size ice packs. And I think i finally got the timing right on the meds, so it is at least manageable. I am attempting to follow the bedrest orders... chair rest really because laying down hurts.

Was supposed to go somewhere today but the idea of being in the car just doesn't do it for me so I will spend another Saturday sitting on ice and knitting.

Hey Virginia, what are they doing for the DDD and DJD? That keeps showing up on the c-spine and lumbar scans, and each time it is noted as getting worse, but they claim it is mild... try telling that to my back! There is nothing mild about it.

I hurts me to read of your suffering! Mine is mild compared to this!
I did have a lot of pain from 17 years old to Menopause, because I had
undiagnosed Porphyria, and didn't know what "triggers" to avoid, and I
had very severe ab pain which was usually written off as emotional.
So I know what pain is, but right now it's mild compared to yours.

Praying for relief for you, if that is allowed or welcome. Don't know the
rules for this new forum.

Hello
 

[Hi, and no that spinal stuff is horrible. I have DDD and DJD. Had fusion at C-6-7. Now I present with the others C3-7 degenerated to heck six years later. I got a good new NS. My disease just is one of the not so good kind, but not all degenerative disease, progress this bad. I was also told, no guarantees, because it is in all my joints, not just my Cervical. I have no idea what else can be done for these diseases. Mine started with an auto immune problem. Alot of people on this site have auto immune problems, with the degenerative diseases. In my case I know they are related. Please share if you care to what they said about your condition you are in right now?

Hi mariel
 

This forum to use is wonderful. I am new to the site and am talking to alot of good people. It seems to me everybody is real respectful of the others who are suffering too. I have not found any restrictions on dicussion, but I did go to chat room with a senior member when I was freaking out about my up coming surgery. She calmed me down a bit so I could think. I felt like a rabbit caught in the headlights. Hope you continue to come to this site. Ginnie

If they didn't miss dx we would all be healthy!

Edit (the following day) - I hope that didn't sound harsh. I'm as anxious, hurting, MS progressing after being a c7 parapleic for 20+ years to boot and pray to god (not that i'm a believer) that everything including cancer will be solved during our time.

Ed