Reply
 
Thread Tools Display Modes
Old 08-23-2010, 04:04 AM #1
Erin524's Avatar
Erin524 Erin524 is offline
Elder
 
Join Date: Dec 2007
Posts: 5,020
10 yr Member
Erin524 Erin524 is offline
Elder
Erin524's Avatar
 
Join Date: Dec 2007
Posts: 5,020
My Mood: Is numbness supposed to do this?
10 yr Member
Default Is numbness supposed to do this?

The right side of my body has been numb for several weeks now...and has been getting more numb. (and my left foot is going numb again now...crap!)

I noticed tonight that the inside of my mouth is numb on the right side...and now it seems like I'm thirsty all the time. Anyone else ever had numbness like that and the sensation that they're constantly thirsty? I dont think I have an infection...for one of the first times in a long time, I dont feel like I do.

The numbness is also involving the right side of my head, and my ear. I'm wobbly when I walk, but I dont feel like I have vertigo. Does anyone know if the numbness can go inside the body along with being just surface numbness and affect the inner ear?

I'm having problems walking. Right leg feels like I can barely lift it when I'm trying to put on pants, and it feels like I'm listing to starboard (to the right) when I walk.

Right side of my neck hurts too..

I'm calling my neuro (again!) in the morning. I just feel like something is very very wrong.

How do you know when you have to insist on steroids, rather than just suffer thru the symptoms?? The involvement of my face and mouth and the weirdness with the leg are scaring me. I really feel like the MS is getting worse.
__________________
~ Never do anything that you wouldn't want to explain to the paramedics. ~ Author Unknown ~

~ "Animals have two functions in society. To taste good and to fit well." ~ Greg Proops, actor ~
Erin524 is offline   Reply With QuoteReply With Quote
Old 08-23-2010, 07:51 AM #2
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
10 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
My Mood: Is numbness supposed to do this?
10 yr Member
Default

please call your neuro.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (08-23-2010)
Old 08-23-2010, 08:31 AM #3
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
10 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
My Mood: Is numbness supposed to do this?
10 yr Member
Default

What Dej said, but listen to your neuro, tell them what you've had symptom-wise, and then listen to their recommendation for treatment.

IF they say "Solu-Medrol" or a course of oral steroids, go with the neuro's suggestion at this point if you feel this is the best for you.

If you're unhappy with your neuro's advice for your treatment, you need to let them know.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
Old 08-23-2010, 11:06 AM #4
Jules A Jules A is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,424
10 yr Member
Jules A Jules A is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,424
My Mood: Is numbness supposed to do this?
10 yr Member
Default

That is scary. Please keep us posted and I hope you feel better soon.
__________________
He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
Anonymous
Jules A is offline   Reply With QuoteReply With Quote
Old 08-23-2010, 11:34 AM #5
mrkmyword's Avatar
mrkmyword mrkmyword is offline
Junior Member
 
Join Date: May 2010
Location: Israel - and my head
Posts: 53
10 yr Member
mrkmyword mrkmyword is offline
Junior Member
mrkmyword's Avatar
 
Join Date: May 2010
Location: Israel - and my head
Posts: 53
My Mood: Is numbness supposed to do this?
10 yr Member
Default

I agree with everyone. I had that same problem my first year of DX. My right side was getting more and more numb especially my mouth I was drooling without noticing food stuck to my face and not feeling it. It was not a pretty site.

I took Solu Iv then pills for a week started feeling better.

Let us know and feel better Erin
__________________
DX:June 2007
Plasmapheresis:2007
Cyclophosphamide :07/08
Rebif 44 :2008 -09
Copaxone: 2009 ongoing
atypical RRMS


NEVER assume!
I may not look sick but you should see my brain!
.

.


“The thing that is really hard, and really amazing, is giving up on being perfect and beginning the work of becoming yourself.”
Anna Quindlen(American Author, Journalist)
mrkmyword is offline   Reply With QuoteReply With Quote
Old 08-23-2010, 01:39 PM #6
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
10 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
My Mood: Is numbness supposed to do this?
10 yr Member
Default

It sounds like MS is doing what it usually does. It's short cercuiting your wires/nerves. Definately advise your Neuro to see what he/she suggests that you do.

Take a deep breath...don't panic.
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (08-24-2010)
Old 08-23-2010, 04:07 PM #7
EddieF's Avatar
EddieF EddieF is offline
Member
 
Join Date: Oct 2009
Location: USA
Posts: 700
10 yr Member
EddieF EddieF is offline
Member
EddieF's Avatar
 
Join Date: Oct 2009
Location: USA
Posts: 700
10 yr Member
Default

Tell Neuro asap. IVSM? I've only had one round for 3 days last yr. Helped eye sight a bit, not numbness.
EddieF is offline   Reply With QuoteReply With Quote
Old 08-23-2010, 04:36 PM #8
MooseasaurusRex's Avatar
MooseasaurusRex MooseasaurusRex is offline
Member
 
Join Date: Jan 2008
Location: Standing right beside you. (Elizabethtown,NC)
Posts: 855
10 yr Member
MooseasaurusRex MooseasaurusRex is offline
Member
MooseasaurusRex's Avatar
 
Join Date: Jan 2008
Location: Standing right beside you. (Elizabethtown,NC)
Posts: 855
My Mood: Is numbness supposed to do this?
10 yr Member
Default

AAargh!

I hate it, beautiful. What you're experiencing sounds like my my 1st full blown attack/ exacerbation. Yes, it even got into my mouth as well and made me sound as if I had been drinking/ slurred speech.

Has what you're dealing with now happened before? Anything different in your routine? ***diet, meds, sleep patterns, etc.?

Other than that, quiz your doc and I hope this passes quickly.
__________________
You can't have everything. Where would you put it? -Steven Wright
Once you change your mind, you can change your life. -Della Reese

.
Always outnumbered...
Never outgunned
.

*I* am the MonSter that MS fears
MooseasaurusRex is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Debbie D (08-23-2010), Dejibo (08-24-2010), dmplaura (08-25-2010)
Old 08-23-2010, 06:00 PM #9
Erin524's Avatar
Erin524 Erin524 is offline
Elder
 
Join Date: Dec 2007
Posts: 5,020
10 yr Member
Erin524 Erin524 is offline
Elder
Erin524's Avatar
 
Join Date: Dec 2007
Posts: 5,020
My Mood: Is numbness supposed to do this?
10 yr Member
Default

called, no one has called back, and it's past the time the neuro usually would call back. ~sigh~

I havent been hungry. But, if I eat something I have no problem eating it...kind of like my stomach doesnt realize that it's hungry until food hits it.

The not being hungry part is a bit disturbing, but if I dont eat, I dont think I'll start starving for at least 50 or 60 pounds. (I'm in the 250, 260 range for weight, so I'm really not bothered about not being hungry if it means that some weight will get lost, hopefully the flare will go away and I'll be able to go back to normal tho and actually work out some to keep the weight down)

I havent been sleeping well lately. I'm uncomfortable with the numbness and the spasticity is just annoying enough to keep me from sleeping. I didnt sleep till about 6am this morning, and got up around 130pm. The spasticity isnt painful (yet) but it's uncomfortable enough to keep me from being able to relax to sleep. I havent found the magic combination of baclofen and valium to calm the spasticity down yet. (I never did find the magic combination back in May either...I just threw baclofen at it until I could sleep)

I dont like the stoned feeling I get from the baclofen and valium. I dont know why people take valium for the fun of it. Makes me feel icky.

It's 70 degrees in my room. I'm cold but still feel hot (no fever tho, thermometer claims I'm "normal")

I noticed eating earlier that some of the numbness in my face feels like it's going over to the other side where it wasnt before.

It's just really disturbing to feel like crap, have funky sensations and weird stuff going on. I just want to feel normal again for awhile. (by "awhile", I mean for 3 or 4 decades)

I feel kind of weak, but that might be from not feeling hungry. The weakness is bugging me because when I go to take a shower I feel shaky. My bathroom is supposed to get remodeled soon, but they're not moving as quickly as I want them to. (taking out the fiberglass insert, putting in tiles and a ton of grab bars...at least 3 in the shower and two just outside of the shower...I want something to hold onto that wont snap off the wall or the shower door if gravity suddenly sucks me to the floor) I'm kind of scared to take a shower because it's a cramped shower space with that stupid fiberglass seat taking up all the space in the corner. Not having a grab bar or three to hold onto while I'm washing my hair makes me a little nervous to take a shower. I went about 5 days this week without taking a shower because of that.

I dont want to use my parents shower because it wasnt built to code (getting irritated at people/contractors who seem to like to screw my dad out of money) His shower is getting redone at the same time mine is done and I'm the one who found the contractors this time. (I got references and a decorator and I'm asking to see the permits and I'll be watching them build it so I know what's being put in. I have a basic working knowledge of how things are supposed to be done now)

I'm just really tired, frustrated and really uncomfortable from all the MS crap that's going on. At least, so far, it's not as painful as it was in May when this flare started and I had the giant, invisible python around my waist. (knock on wood that the giant, invisible python doesnt come back for a visit)

I just want this stupid flare to quit and go away so that I can hopefully go back to what passed for normal before. Plus I want to be able to watch the contractors do our remodels. (taking in-progress pictures if I'm able to so that I can how things are done, and if in the future we have to fix anything I can look at the pictures and see what was used in the remodel)

hopefully the neuro will call me back in the morning and either reassure me that the MS isnt about to beat me up or he'll offer me a $5 bottle of oral steroids to throw at the flare. (probably wont. I had IVSM last summer, oral 'roids last october, and IVSM AND oral 'roids in May of this year...think that's the limit of what he'll give me in a years time)

The MS is just really peeving me off.
__________________
~ Never do anything that you wouldn't want to explain to the paramedics. ~ Author Unknown ~

~ "Animals have two functions in society. To taste good and to fit well." ~ Greg Proops, actor ~
Erin524 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (08-24-2010), SallyC (08-23-2010)
Old 08-23-2010, 06:11 PM #10
EddieF's Avatar
EddieF EddieF is offline
Member
 
Join Date: Oct 2009
Location: USA
Posts: 700
10 yr Member
EddieF EddieF is offline
Member
EddieF's Avatar
 
Join Date: Oct 2009
Location: USA
Posts: 700
10 yr Member
Default

1st off please be careful in bathroom. Playground type rubber mats would be a good thing and wish my friend would've thought of it last year. rip.

I went to the hospital last year because my neuro wouldnt work with me. They gave me shot of medrol in my arm and sent me on my way after 4 hrs so I wont suggest that. I did learn however if I ever need to go there again im calling ambulance to avoid the waiting room and get promt attention.

Not eating may not be a good thing. Eat something small at least, healthy.
Please get this taken care of tomorrow the latest.
EddieF is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (08-25-2010), SallyC (08-23-2010)
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Is it supposed to feel like this ? RUReady Reflex Sympathetic Dystrophy (RSD and CRPS) 5 07-13-2010 08:03 PM
Okay, when are you supposed to call your neuro? Debbie D Multiple Sclerosis 17 11-11-2009 04:29 PM
Is an abscessed tooth supposed to hurt this much? Erin524 The Stumble Inn 14 04-29-2009 12:45 AM
OMG!! It's supposed to be 105 degrees today!!! Erin524 The Stumble Inn 27 07-30-2008 11:22 PM
Day 2 of how am I supposed to live sheena Multiple Sclerosis 25 02-24-2008 06:03 PM


All times are GMT -5. The time now is 12:39 PM.

Powered by vBulletin • Copyright ©2000 - 2020, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2020 DragonByte Technologies Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2020 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.