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Old 08-30-2010, 11:23 AM #11
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AynaDee AynaDee is offline
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AynaDee AynaDee is offline
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Join Date: Jul 2010
Location: Illinois
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Sorry to hear all of that coffeegirl. I have definitely experienced what you are/have gone thru.

The squeezing of the brain-- I get that when I laugh too much or smile for too long. its always the back lower left portion of my brain that feels squeezed and yes it does hurt. Usually when I frown it actually helps loosen that tightened area in my brain up. (as crazy as that sounds)

Heat/vertigo--Its awful! I hate the vertigo. Yes it gets worse with heat. Also if I turn my head while walking the vertigo kicks in or if I look directly straight up I fall over because the spins are so serious. and yes walking like your drunk sucks and is SUPER embarrassing.

Mornings- I always have more energy in the morning, once noon rolls around I have to take a nap so I can stay awake til 8. It sucks as well and I hate it. Here's my personal saying/agenda--- I'm late to wake, early to bed, with naps in between.

I don't like these arrangements as I am only 22 and I operate not like a 22 year old but of an elderly persons schedule but I can't stay awake til 10 anymore. Shoot, I am lucky if I make it to 9 lol.

I hope that this helps you feel a lil better about those really weird things your experiencing.

MS is such a bizarre disease. I experienced a 'POP' in my brain last year that I FELT and heard and my neuro still has no explanation for me...

Also I usually am in a haze due to cognitive problems and have done really bizarre things like putting the milk on top of the fridge and the cereal in the fridge? weird things like that almost on a daily basis. My first exacerbation I could not walk, my speech was slurred, slowed and I had a very hard time finding the proper words to make a sentence, I had memory problems, couldn't multi-task (which I still have a hard time doing) My eyes would jerk alot or get double vision, horrible electrical shooting pains in my brain (right side) and many many more.

I have come to this conclusion. . . . . 'MS just sucks!'
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