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-   -   New to MS, still figuring it out, what your opinion on this NEW symptom? (https://www.neurotalk.org/multiple-sclerosis/131238-ms-figuring-opinion-symptom.html)

FaithS 09-06-2010 01:23 AM

I've also never heard of a 16-day steroid treatment, exactly. (That's how you worded it.) But, a 3-5 day treatment (which is what you describe), followed by a taper to a lower dose, is not unusual.

I don't know what the norm for others is, regarding dosage. I generally take a 5-day treatment of 1000 mg (much higher than what you are taking), followed by a taper. Even with a high dose like that, I often end up hospitalized for part of my flare, because it takes awhile to kick in.

Either my former neuro, or my PCP, can Rx steroids and do other more local things, as my MS specialist is about a 3-hour drive away.

I used to go to my former neuro for that stuff, but he tends to give really long tapers -- sometimes 1-2 months. My PCP is willing to get me off in 10 or 12 days, following the initial 5 day dose, so I'll be going to him for tapers in the future.

~ Faith


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