Over thirty years after my first teenaged symptoms until dx. Dx came when I had eye problems (double vision, scotoma, visual fields, etc.) plus MRI showing demyelinzation.
However, then later I was dx'd with Porphyria, which can produce some similar symptoms. At this time, I am in permanent limboland, not even trying to change it. Don't go to a neuro any more. I have neurological damage and some new symptoms due to newest disease, Polycythemia Vera, which can cause vision problems too due to "thick blood."
I figure I have a form of MS which may be related to Porphyria....I know from extensive reading here that MS takes MANY courses, many forms. Even a positive dx will not
necessarily be the end of the diagnostic journey, nor the experiments in how to treat,
etc.

My best treatment has been the Swank lowfat diet. Hard to stick to now as I am in a
"facility" recovering from a broken knee caused by falling down due to numb feet. It's getting harder with old age. A long trip from 17 to 79.