[barb02]

Has anyone had any experience with getting off of baclofen? I was talking 60 mg per day and have been tapering off of it by 10 mg every four days. Now I am wondering if that is too fast. I am now down to 40 mg and should reduce my dosage to 30 starting tomorrow. I am doing this according to my neuro's directions. First he told me to reduce it by 10mg every five days, and then he said I could do it every four days when I complained that it would take a month before I could try something else for my spasticity.

My spasticity is a bit worse, but I am also feeling off. I am wondering if I should slow down the taper a bit. I have plenty of pills. On the other hand, he will not allow me to try zanafex until I am completely off the baclofen.

[EddieF]

I'd let my body adjust a little longer between reductions. I'm on 120mg.

[Debbie D]

Barb, call the doc and let him know, esp since you've started back to work...

[Dejibo]

I say its individual. if you can do it fast, then get off it. if your body revolts, then go slower. tell your MD that you simply are working as hard as you can to move on, but he will need to be patient. dont push past your own breaking point.

I can just jump off stuff, where as my neighbor takes 5x as long. its all individual.

[EddieF]

Dej is right. Everyones different. If your bod says i'm ok, its ok. I know I cant because the few times I forgot to take my night meds, my eyes were wide open when I woke at 5am. During the day I forgot once and bruised my feet spasing/kicking brake pedal (I use hand control).

[sabimax]

Barb what is dr going to try after you are off?? curious... I had been on five pills of Baclofen a day... and now last few weeks doing more like 3 a day.. just cause I think I am in just as much pain with or without.. so was just slowing down to see... no difference so staying on the three... but might check with neuro about getting off it and seeing how I do without now... heck wish I would have kept a log better of sxs last year... like I used to...

I was put on the baclofen due to the stiffness pain I would get first thing in mornings before moving much... oh it helped right away... but since I can not remember if the back and neck stiffness pain ever happened before baclofen or started after... weird but somehow I was wondering.. due to ... wonder if the relaxant could be making things worse or better! not sure if this makes sense lol...

I hate meds... and already on gabapentin for years now.. so just trying to wonder if always need to be on both... hguss and good luck,sarah