I resemble that remark...

If someone asks, I say, "I have good and bad days...today is a good day." Of course, if I'm walking like the Tin Man or a drunk, they know I'm lying.
When DH or the inlaws ask, I usually say I'm fine, then they give me a look and say, "Truth or are you lying?"

I try to ignore the stupid disease...I wish they would...

I have a son that is 36 years old, he thinks attitude is everything and thinks no one should complain about anything, he has never had anything happen to him in his 36 years (medically or any other problems, good choices I guess) so he really doesn't get it when things do happen to people, and we all know no one get out of this life without problems, sometimes I wonder if he will be able to handle it when it does happen to him, and it will, anyway, he has taught me to not complain and always keep a good attitude so I guess I have to thank him for that.

Butter, thinking of you.

I completely understand what you are all talking about; not yet sure what all my symptoms are related to. Heard 'it's in your head' 'it's all the meds' 'it's migraines'..... And whenever anyone, mostly family ask about it- like one of you mentioned, really- they (DO NOT) truthfully want to hear about any of it- at all. The irony of that is this: Most of them complain about the dumbest things- flu, ear ache/infection- (horrid pain), headache (not a migraine- like a level III for 5 days straight unable to get out of bed type), symptoms that make anyone unable to drive, walk, etc.....

No, I've learned not to ever have a pity party around anyone, including my DH. Everyday I get up and put a smiley face on and muck it up like nothing is wrong; pretend it all is okay- when I'm completely miserable, unable to function at all, barely able to walk/eat. When anyone asks how I'm doing- I do what all of you do. Exact same thing.

Sadly, my two sons are picking up on it. They are questioning my behaviors and if I'm putting up a front. That upsets me. I don't want to worry them. I have had to tell them I'm not well but hopefully it is just something simple that the doctors can fix- med related. Doubtfully.

I'm glad to come here. Right now I'm waiting to hear back from the Mayo Clinic. Tomorrow they will be sending/faxing my records to the Mayo Clinic. One thing about their clinic- at least I will get a specific scheduled appt. But the odds of it being anytime soon are very rare- the receptionist told me to be prepared for that- 6-12 months for the average wait. Same as the other clinic- but that one is worse and unpredictable. Better odds with Mayo.

Butter you are in my thoughts and prayers.

Coffeegirl