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Old 09-08-2010, 09:37 PM #11
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Aww sweetie!!

It's a terrible drug. I think a card would be nice for him. I think it speaks volumes that he was also emotional watching you.

I don't think he was emotional for his situation. Just not the 'guy' thing from my experience (sorry men, no ill feelings intended!). If he was crying, he was crying with or for you, and that's a huge thing. It means he cares a heck of a lot for you.

Sounds like you have a great man in your life. Now the challenge is to stop living 'around' the disease. I worry that yes, you are missing out on life by staying cooped up to avoid a flare or a relapse. By doing so, you're putting your life on hold, and your focus on the disease.

When you're feeling a bit better, see what you CAN do, not what you CAN'T do. Put the focus there, and eventually explore those 'cant's' again, and then work on making them into 'cans'.

With that said, MS itself is an extremely emotional ride. Add to that the ugly, awful roids and you're hit with a double whammy.

Keep a cool head (as best as you can) about this one. You're not a failure by any means, and your man certainly doesn't see this either. Hold onto that one, sounds like a good man .

There will be plenty of parties ahead for you. Get better today and thanks for coming here to share
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Old 09-09-2010, 01:54 AM #12
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(((((((((((((((Ayna)))))))))))))))))))))) Complete understanding hugs. Hang in there. I know it just completely and utterly sucks, but at the very least, you're not alone.

This past March for the first time ever I tried IV Solumedrol after going through a flare. I have MS about 18 years , but wasn't diagnosed til 11 years ago. I had taken Prednisone before, but never Solumedrol. Anyhow to get back on the subject, the Solumedrol really threw me for a loop. I had such high hopes and thought it would help me more than it did. Add to that my Dad passed at the beginning of May when the flare wasn't still quite over. To say I've been very emotional since then is an understatement.

Your boyfriend definitely sounds like a keeper and I'm glad you have him. I'm sure he wants to help you in any way that he can. I bet at times like this he just doesn't know what to do to help. The fact that he cried with you and was there for you to vent to is a comfort I'm sure. I agree that a card to show your appreciation to him is a nice thing to do.
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Old 09-09-2010, 10:40 AM #13
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Thank you soo much dmplaura and desinie!!!!

I really do have quite a gem for a boyfriend, like his mom said, he has legs, if he wanted to leave he would have walked away from the situation a year ago, and he did not. I am such a fortunate person, God spoils the crap out of me! And I am EVER so thankful!

You are so right dmplaura about the double whammy that I just got hit with. My emotions were so WHACK yesterday, I definitely was a basket case! lol

I just love LOVE LOVE this site. Everyone on here makes me feel like family and I feel like I can talk to all of you guys about anything! You are all so great!!!

So I am going to get my boyfriend a card today and have it ready for him when he gets off. I went to bed really early last night, woke up at around 9:30 this morning and have just stayed in bed since. My body still hurts quite a bit but near as bad as yesterday so I can tell the resting is helping.

Desinie- I am so sorry to hear that you had to go thru a flare and deal with the loss of a loved one at the same time.. That had to be so hard and probably made it very difficult to pull out of that flare. Im very sorry my dear!

Again, thanks so much to all of you that responded! It helped so much to write out all my emotions and have people that know fully and understand what I am going thru to relate with me, it's very comforting!

I love you guys!!!!!
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Old 09-09-2010, 11:31 AM #14
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(((((Ana)))) This disease does suck and yes the roids do a number on you don't they? Listen, I've been doing this for 22+ years with Jim and I have cried for him, for us, for me, for him, for us, for me...lol It's an emotional cycle for everyone involved. But everyone is right, if he was that emotional with you then he most likely cares and feels so bad that he can't fix it. I hate that I can't fix Jim so I can imagine how a guy could feel about the woman in his life.

It's almost November Ana! And you know what that means!!! Never thought I'd wish for November, much less January. See you soon!
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Old 09-09-2010, 12:16 PM #15
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(((SandyC)))

You're the best!

I am definitely finding that MS is forever going to be an emotional rollercoaster, good, bad, beautiful, and ugly. What I have also found is that out of every bad and ugly situation that MS presents to me, I get a ten times more beautiful and greater situation the next day. For instance, yesterday, I was a trainwreck from hell, mentally and physically. Today I wake up feeling better physically (rested all night last night) and emotionally. I have my family and my friends, my boyfriend to wake up to everyday and I can walk today. So even tho those poopy situations that I get pulled into suck SO VERY MUCH, I am ever so glad that they happen because they make me such a strong grateful person, well and of course you guys. I soooo wouldn't be here today in this position with out all of you (especially you Sandy! You're what brought me here! THANKS!)

And yes it is ALMOST NOVEMBER!!!!!!

I think some really good things are comin our way Sandy!
I just read two different articles that seemed like there is great hope for us patients here in Illinois!
Bring it on!!!!
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Old 09-13-2010, 12:47 AM #16
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Ana, I am sorry to hear about your very, very, bad day. You are entitled to get them every now and then, especially when on meds. I lived in denial for so many years. Then I was angry for all the things I couldn't do anymore.

Truly I never came to acceptance, never felt it made me a better person having MS. But I don't dwell on it. I try to forget it. Everyone gets something, even babies. Nobody dies healthy unless extremely old or hit by a bus. MS is a pain in the hind end, but better days do arrive, so I wish them for you, and your boyfriend too.

Ask your BFF to come visit you is you can't do the stairs.
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Old 09-15-2010, 11:53 AM #17
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Thanks a bunch LADY!

I am really sorry to hear you have not come to acceptance of this disease, but everyone has their own way of dealing with it.

Luckily there is this forum to turn to when your world/day comes crashing down upon you.

I love this forum and all of its characters!

They were right, we're a huge dysfunctional family!

Thanks again for your response!
-Ana D
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