I just got this in my Neurology Watch newsletter. Not sure if it has already been discussed here.

....to read more please go to
http://neurology.jwatch.org/cgi/cont...q=etoc_jwneuro

Thanks so much Chemar for this info. I do hope that peeps don't rush this thing, although, a friend sends me CCSIV videos of new patient's and theie positive reports every week.

Go to U Tube and you will see several Success stories by peeps who have had the balloon treatments.

I'm hoping that the CCSVI is a real thing and not just a snake oil cure.

I'm really interested in it, but not interested enough to allow someone to screw around with the veins in my neck. I have a weird phobia about people touching my neck. (came from a bad experience with a chiropractor...moron didnt give me any warning before he cracked my neck. I tensed up and it HURT a lot!)

Well I am a true believer. I am going to be tested for CCSVI within the next few months with a MRV. I want the test (it's like a MRI only of the veins). If blocked I will go from there. This is only a test, not the procedure, YET!

I believe if we have blocked anything in our bodies, it needs to be addressed. It is not healthily. It is a congenital defect. If my leg had a blockage then that vein should be unblocked. They do it all the time. This is the same principle.

I spoke to my IR when he did my Thyroid biopsy on that nodule. He has done many of these procedures for accident victims, birth defects, illness like cancer, but not with Dr Zamboni's protocol.

He is being trained now. He will not be the one I pick, I would want an IR MD that is well trained with the special protocol for testing, so they know exactly what they are looking for. I will get a consultation and a copy of my MRV. It is up to me what to do with it, and whether it is negative or positive.

My MS Specialist's Hospital in NYC, where I used to go, has started doing them. I trust him and the hospital. I don't believe they would risk their reputation on a snake oil procedure.

They do surgery on all the famous stars and famous sports people who get injuries in their sport, like football players and such.

So that's my story and I'm sticking to it.

When I find out more I'll keep you updated.

I'm from a family of medical people. I've got a healthy suspicion of being in the group of the first people to have any procedure done. I want to wait till it's been around for more than a year or two and find someone who's had a lot of success with the surgeries/procedures before I'd have it done.

Hopefully I wont have any massive amounts of damage done to my body before that time.

Has anyone here had it done with success? I know 2 thru blogs, Message boards, etc., who have had it done but with no success. U-Tube is NOT my yardstick for evaluating anything.

http://www.msdlatinamerica.com/ebook...#F49_40-RE1-A1

Above shows many doppler images & more. Looking at my doppler again, I think I need to have it viewed by another doctor. Tech's aren't allowed to say much during procedure (shame) and it was my 1st time. If I ever have it done over again, I'll have him/her look harder at pulses, flow, ect.

Edit - and no longer will I say ccsvi to Dr's. Venous Insufficiency they'll all understand.

The mesh stent made now, is made of Titanium and a bit of Nickel in it. This way you can still have MRI's with the metal in you. Adn not beep at the airport.

I'm going, nothing is going to stop me. It has been over two years that people have been having this procedure. There are videos that show how it has helped over 2000 people, and they made up to date video's of these people two years out.

Another website has people talking about how they are doing, good ones or nothing at all yet, and how they feel about it down the two year road. Many say they would do it again if needed. Some will need it again as not all the blockages are clear or some have re-stenosed and need stents.

If you are young and not bad off you can wait. You probably have the time to. I feel it is well excepted in the community and they have been doing this procedure for tons of years for other purposes.

They just need the training for the testing protocol. They have to see MS patients MRV's and a non MS MRV's and find the difference, if any. Same with 3D Ultra-sound Doppler's for reflux and blockages.

The best test is the Catheter Venogram, just prior to the Catheter Venoplasty, but you must have a test before that. JMO

I suppose it could be the placebo effect? Or something like that? I know that if you are very up and positive about something you can have the feeling that it is doing something when in fact it is really just an increase of endorphins and the like. After the initial excitement wears off, the former condition returns.

I have a lot of questions about this (and any other supposed MS "cure"). There have been lots of snake oil salesmen out to make a buck and most of these just don't pan out.

My niece tried many of these over the years, from bee sting therapy to oxygen chambers and she's still in very poor shape from the MS. I am very critical and so far only open to those that have gone through clinical trials and have shown effectiveness for treating MS when it comes to medical procedures or medications.

Could you post the links to these sites? I'd love to see some of the success stories. I really, really do hope this is a legitimate fix for these people.....and the ones who are going to give it a try. It would be such a blessing.