[SeamsLikeStitches]

I was diagnosed with PN (Peripheral Neuropathy) six years ago. My sister has had MS since we were in our 20's. (we are now hitting 50, but she is younger). Mine is very very painful, hers somewhat painful.
I was describing some of my "new" symptoms to her today at lunch, and she told me it REALLY sounds like I have MS!

I was only tested for MS one time, six years ago, when I was first diagnosed. They did an MRI. There was never a follow up. However, my PN has slowly progressed up my legs to my knees. Her MS is the kind that comes and goes. She doesn't work, because she has more bad days than good lately. However, she doesn't have to use a wheelchair yet.

It was an interesting lunch though we both walked in using canes, and our mom walked in all healthy at 70 years old!

Have any of you been misakenly diagnosed with PN, or known of anyone who has? I couldn't wait to get back here to post this to get some feedback from you guys! I'm going over to the PN board as well!

Thanks everyone for your support!

[Jodylee]

Hi Terri! Welcome to the MS board. I wasn't diagnosed with PN but I was misdiagnosed with many other things over the years. It took about 17 years for me to get the correct dx.

I had an Mri way back in the early '90s and was told I did not have MS then. Many of us here have had problems with getting a dx.

Good luck . I really hope you don't get an MS dx.

[Dejibo]

I was dx with PN and it took several years for it to be revealed as MS. it felt like I was standing on red hot pavement barefooted when mine would strke. It got blamed on everything from migraine syndrome to anxiety and even malingering.

I hope you get answers soon.

[Kitty]

There are so many diseases that mimic MS. You'll need more than an MRI to dx. If you truly believe you have it you'll probably need to go to a Neurologist who specializes in MS so that they can monitor you and administer more testing....some of them invasive.....like the LP. You don't necessarily have to have an LP for a diagnosis but some Neuro's insist on it. If you're having sx you might want to begin a journal and keep track of each sx and when it happens so the Neuro can see a pattern.

[EddieF]

Stitches just get MRI of brain & c spine. Spinal tap if you're up for it. Will answer your question quickly. Wish you luck.

[SallyC]

Welcome to the MS board, Terri..

I was DXed in 1974, by my PCP, with PN but he sent me to a Neuro for a 2nd opinion and he DXed me, in '75, with MS, after many tests in the hospital..No MRIs then.

I have learned from others that PN & MS go hand in hand a lot. So you may have both?


BTW, I'm your Momma's age..