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09-18-2010, 06:57 AM
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Elder
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I wonder if there are any neurologists or neuroscientists or whatever that have MS (there must be) and what THEY choose for treatment for themselves?
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* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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09-18-2010, 10:58 AM
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#2 | |||
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In Remembrance
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I know of one Doc on Copaxone and of one English Doc on LDN.
Good Question!!! 
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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09-18-2010, 04:14 PM
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#3 | |||
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Member
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I went to my Gyno last Monday. He was diagnosed since I saw him last year. He is on copaxone. He is in his 50's and not doing well at all..he can no longer do surgeries or deliver babies.
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God never promised a smooth journey, just a safe landing! |
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09-19-2010, 11:39 AM
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#4 | |||
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Member
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Dr. Vincent Macaluso in Great Neck, NY is an MS Neurologist who has MS. He started with Avonex, but was loosing a day or two from side effects. Switched to Tysabri and is doing great. He speaks many weekends for Tysabri.
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Bill SCUBA, the true meaning of Life San Francisco Maru 2009 USS Monitor 1996, 1997, 1999 Andrea Doria 1996, 1998 USS Wilkes Barre 1991 |
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09-22-2010, 12:32 PM
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#5 | |||
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Senior Member
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I know one doctor and one neuroscientist and both are on Tysabri, but both had been on Avonex prior to that.
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Dx: CNS Demyelinating Disease (2005) Take me back to days full of monkeyshines Bouncin' on a bubble full of trouble in the summer sun Keep your raft from the riverboat Fiction over fact always has my vote And wrinkles only go where the smiles have been... Jimmy Buffett from "Barefoot Children in the Rain" . |
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09-22-2010, 10:28 PM
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#6 | |||
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Senior Member
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Many TV star personalities say they are on Copaxone. I guess having no bad flu side effects, lets them continue to work.
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LADY May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind. "Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't. |
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| "Thanks for this!" says: | SallyC (09-23-2010) |
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09-22-2010, 10:47 PM
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#7 | |||
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Member
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I know a neurologist with MS that is on Tysabri.
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On Tysabri and love it. . |
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| "Thanks for this!" says: | SallyC (09-23-2010) |
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09-25-2010, 10:35 AM
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#8 | |||
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In Remembrance
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Sandy Kornwise was a neurologist in Detroit in the early 90's. I just googled him. Yeap. He came up. He had MS. So did a post I made to our own Doc John here on NT...
We had a small (~100 people) bulletin board group that kept up with all the MS trials going on at the time. This was before 1993 when the beta 1b first got approved (Betaseron). He was instrumental in keeping us up to speed with all the medical jargon. I stopped participating in the board when Prodigy got too expensive and switched internet providers. It was a Prodigy bullletin board. I don't know if he ever did go on any of the drugs. He did think favorably of the beta 1b trial results. Tom |
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09-25-2010, 10:44 AM
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#9 | |||
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In Remembrance
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I just read a couple threads here and I need to add something. Sandy was most impressed with Dr. Ted Yednock's work with monoclonal antibodies. I was too. This fizzled however with the interest shifting to interferons in the medical world.
And now you know why it's called TYsabri. Tom |
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I wonder what docs choose?
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