[coffeegirl]

Tomorrow I get the test results back from the neuro-exam. No clue what they will find or tell me. Who knows. I just know that all of you have been in this situation before- and I'm thankful that finally we have gotten to this point with all of my neuro problems.

I do know one thing: Family support: Hmm... ????

People do not want to hear about 'the symptoms' 'illness'- etc. When I tried to explain to a family member why I can't remember things and why I was walking so strange- the person just ignored it and went on talking about themselves.

Go figure!

[Desinie]

Hi CoffeeGirl,
Good luck tomorrow. I hope you get some answers. I know how frustrating it can be to have to wonder , wait and worry. I also totally understand what it's like to explain to family members and friends what symptoms you're having and have them turn it around to themselves. It's very hard to find support from anyone other than other people who have MS and have or have had the same symptoms as myself.

That's why I find boards like this so very valuable to me. Keep coming here. We understand and will be your support system.

[coffeegirl]

Thank you Desinie. I know everyone here truly gets it-especially about the family thing. It is very frustrating. Sad when family/friends look at you from another angle.

We went on a camping trip a few weeks ago. It was more than I could bare- and it was obvious that I wasn't my usual self. I fell and had a bad accident- bad sprained foot and lots of scrapes and bruises. Only one friend understood and was compassionate. The others basically thought I was avoiding them. Little do they know that just sitting outside is difficult- it was hot that weekend- not good on the body. At least my hubby and kids are able to understand it more now. It was really hard for them to deal with all of the crap this summer with me holding up everyone from doing all the activity things we used to do.

Thank you for your words of support and hugs. Hugs to you too!

Coffeegirl

[NurseNancy]

it's interesting how many people just want to talk about themselves.
in fact, if any one is shy that's the best way to be able to socialize easily.
just ask people about themselves.

i hope whatever way the test results you will get what you need to move
forward.

[SallyC]

Best wishes for tomorrow, CG. Let us know how it goes.

I hope you feel better soon.

[Victor H]

I hope that the results are beneficial.

I bet that they will be.

As for other reaction of others, it is very common for people who do not know how to deal with certain situations to simply act as if what they just heard or saw did not happen. It is a common coping mechanism.

Some folks change the subject to the familiar (themselves). Others prefer avoidance. But there are those rare few who are mature enough to listen and try to understand.

Don't concern yourself with those who are not mature.

-Vic

[clarkstar]

best of luck on the test results, i know how stressful it can be. i came here for info and to be able to talk about this with people that have had the same experiences, because "normal" people don't really understand as you said (i think).

[Lady]

CG, Good luck with your Neuro appointment. Wish you the best. Don't forget symptom meds if you need them too.

[Judy2]

All the best CG on getting your results today. I hope you find some answers and a clearer picture of what's going on. Please let us know what happens.

[coffeegirl]

Hi everybody

I was told that the neurological exam would be to exam neuorlogical issues/symptoms/memory. Today I met with the neuro who 'reviews' the questions. The asst. told me that I a) would not be seeing my regular neuro ever again b) then she told me that I would find out the results today. Grrr

Did any of that happen? NO. Instead of the guy reviewing the test results with me he spent 30 minutes of questioning me about the various types of memory loss I had, physical/mental symptoms and other various things that I did not understand why he was questioning me.

Then he interviewed my husband for 5 mintues. It is very obvious according to my husband that I didn't answer some of the most 'important questions' correctly. And that I didn't understand why we were there or what was going on.

The guy asking me questions then told me that in a week or so my 'regular neuro' would go over the results with me. Hmm...... What would all of you think?

DH told me I appear to have Alzhiemers more than anything. I called and told the asst. of this neuro specialist and told her that I obviously answered the memory questions incorrectly.

I'm very depressed, feel completely like an idiot (due to what my DH told me) and extremely guilty.

Is this the type of neuro exam any of you had?

I just want to crawl in a cave like a bear and never come out again.