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Hi there. I am having the worst flare I have ever had. It started before we went on vacation, so dr gave me oral script for pred. to take while we were gone. It did make me feel better for awhile, but 3 days before coming home I started to crash. My legs will just not work, dizzy, blurred eye and absolutely no energy whatsoever. Legs gave out so bad in hotel room (i had my cane even) I hit the dresser, ate the carpet and cut my face up pretty good. DH called dr and got us in Monday. This is where I am confused on. I truly trust my dr. She stated it was up to me whether if I wanted the IV steriod 3 day. She said since I had been on the oral =2 presecriptions while on vacation (we were gone 18 days) she was not sure how much the IV would help. She also stated that she felt I had pretty much dug myself in a hole and need just time to come out- so put me on bed rest for 4-6 weeks. Has anyone been put on bed rest for this amount of time? Also, today is Thursday and my eyesight is definately getting worse - 1 eye is just totally blurred and other eye is starting to get blurry I think. I have also noticed that the last two days I cant talk right. I go to say something and cannot get the words out or if I do - its totally not what I wanted to say or I stammer. I've never had this happen either. Is this part of a flare? I am still falling when I do get up, the 1 cane is not working. Our house is not really big enough to use walker everywhere. I have seen the canes where they attach to your arm - sort of a brace. My hands shake so bad with the cane this in my thinking might work. Sorry this is so long - just scared and not sure what is going on or what I should do. My husband thinks I should call her back and request the IV - he stated he felt it couldn't hurt at this point. He's just worried that I am left alone during day and will get hurt worse I guess. Anyway - your insight and suggestions are most welcome
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. Lindkaye |
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