Yesterday I though they were going to review the results of the exam with me/DH. Not the case! Instead the neuro specialist interviewed me about everything that has gone on neurological. Sadly when he asked about my physical symptoms (which I typed out a long list of symptoms with a date line)- I could only remember 3 of them!!!!!!!! Now I feel like they will not take my word at all and think I'm making it all up. Far from the truth. I answered one question about my memory wrong and called them back- after they interviewed my DH. He told me that I answered it wrong. I felt horrible.

Did this happen with anyone else? The tech that gave me the exam told me I would never see my regular neuro again. That was not the case. The guy told me yesterday that my regular neuro would go over the results with me in a few weeks. grrr

DH and I feel like we are getting the run around and have no clue what is going on. It is really annoying and making me really upset.

CG,
I feel like I am being rushed through too, They expect you to just spit out your list of symptoms, when we have trouble thinking at all!!! Feel like they think I have nothing else to do but make up things too. I wish I was just making it up, I would go back to the old me!! Thats for sure!! Deb

Hi Deb

How long have you been going thru the 'it's all in your head syndrome'? I've been at it for 5 years and have seen too many doctors that I've now lost count.

Have you had a neuro exam yet? Right now I want to cry and never come out of my crawl space. Not sure what they will dx me or tell me that it is all 'made up' and that it is truly nothing. grrrr

Hope you are having a good day. Today has been very trying for me. Had to run errands and that is not ever a fun time for me or safe either. Driving is disasterous and shopping is the same way. It spins out the vertigo/nausea. Today it was so bad I thought I was going to puke and pass out while standing in the check out at wally world. That would have been a great story to tell!!

Hang in there!!

Hugs

Coffeegirl

Many of us take a note pad into our appointments with us. We are poor historians! We simply cannot count on our swiss cheese memories to be credible. I have a page with all of my current meds, and my current reactions to other meds I have tried. I have a page with my medical history and another with current symptoms. I have a page with my questions, and room to answer them under each question. you cannot count on me to provide a reliable answer when I am tired or stressed. I take my hubby along to help me remember that I have a page with questions.

Thanks Dejibo.

My DH said he will make sure to attend every single appointment from here on out. I gave the new neurologist the information that you mentioned. I have an entire list of meds and when I started them, etc. along with symptoms etc. and other medical info. Sadly, in the interview I was not allowed to 'cheat' and use information to help answer questions. Grrr.. So I looked like an idiot and very unaccountable for my neuro problems. I hope they don't come back telling me it is all made up or in my head or that I have another psychiatric problem (related to wanting to be sick- which is what my sibling told me yesterday!)-grrr

How do you guys handle people who actually think you 'want to be sick' or are faking it?

i ignore people like that. i just don't accept that kind of thinking. i've been known to put a hand up and say, "stop!". i just don't get engaged in the conversation. luckily i have great family and friends and don't encounter that often.

if you don't feel like you got info you needed at your appt i'd call the office back and ask for what you need to know.

going to the dr's can be very stressful. you've learned a lot from this visit and will do better with the next one.

Had my first MRI in 2007 which showed lesions. Had Neuro then, he pretty much laughed me out of the office and told me to get a tens unit for my pain. When my eyes got bad and had to visit neuro-optho, which said I had 4th nerve palsy, because of lesion, then the neuro got a little more excited. Had spinal tap which was neg, then he didn't need to see me again, unless I needed to. That makes you feel unwanted!! GP doc sent me to Mayo twice to Neuro and Movement specialist, which they knew something was wrong, just didn't know what it was. Since then, MRI, showed demylinating MS , second opinion was Demylinating too. I know I need Neuro for dx, but hate to go back to the guy that didn't want me in first place! Is Maddening!!!

people who think you are faking, are not worth the effort to spit on them. Who on earth would want this? Its miserable, folks think you are whining, and it takes years to get a dx. You get needle pokes every day! MRIs that require you to be trapped in a machine, holes in your memory, exhaustion that is overwhelming and ...the list goes on and on. Dont worry about those folks who think you just want attention, walk on by. you have other things to worry about.