Here is their Home Page Link, Jenni. When you get there scroll down to the blue squares and click the LDN and MS link.

~ http://www.lowdosenaltrexone.org/

It shows pretty much all you need to know of the history and Dr. Bahari's discovery of it, for MS.

A lot has been added, as well, that you will find helpful.

Good Luck,

Thanks for the additional info :-)

Today I had a checkup with the MS neuro. The same one has been treating and following me for four years. I'm currently in the Tovaxin trial, but on my second try to have a positive test for MRTC's to make the vaccine.

If the test is negative, then I have to make a decision about treatment. We spoke today after the doctor looked at my MRI's from last week. Given my history, and my fairly clear-looking MRI's, I have the choice to go back on Avonex (which had the least side effects for me of the three I tried) or, go without treatment for awhile and just have regular checkups and MRI's to monitor the disease activity.

I still have to think about it, but I'll likely choose the no medication route if I can't stay in the Tovaxin trial.

I've been dx'd nearly 20 years, but I had the symptoms of MS and/or Porphyria (my other dx) for 30 years before that. Not benign ever...caused grave trouble, although I still walked. The Swank diet I credit with keeping me walking and walking mostly straight. When I got off of it recently to try cocoanut oil for a week I suddenly lost ability to walk straight, got weak, had to lie down. Cocoanut oil was advocated for energy, to improve metabolism, and I think it surely did that, but it also is saturated fat, not on the Swank diet.

My MS was mostly hidden although I always had a slightly meandering walk and still do. My weak arms, eye hand coordination, dizziness, inability to "file" well, loss of IQ points, and finally Optic Neuritis brought me finally a dx when I had my first MRI. Since I always had Porphyria too, also undiagnosed, I cannot say always which caused what; but I'd say MS is benign, or mild, because of the Swank diet.
Since with Porphyria many drugs are problems, I am glad I have something else that really does make a difference. Some drugs have put me into Porphyria attacks. I don't know about LDN and Porphyria.

I am very depressed again, which comes on every time I have a good day when I'm active, get out, see friends....it always is the downer afterwards, and this time, way down. How to even survive it I do not know. I have to just wait.

Mariel

I see several people here saying that they had "mild ms" for years - what is mild? Virginia, for example, says that she had mild symptoms for over 25 years, I think - how did you know? What things did you feel during those 25 years that you finally decided were actually mild MS symptoms? Did you feel mild things every day or did you instead, simply have infrequent attacks every year or two, but those were acute, and nothing inbetween? So does mild mean mild symptoms, but the symptoms are there all of the time, or does mild mean mild attacks when they occurred - or does mild mean infrequent attacks, but severely acute when they occur? Or something different? Clearly, a measure of EDSS is one criteria.

I think that I have seen different people indicating mild in different ways. Would unobtrusive and non-disabling symptoms on a daily basis be considered mild?

For me, I consider my MS to be mild right now because I only have minor lasting effects from prior attacks. For instance, I feel some pain and numbness when anything very hot or very cold hits the lower half of the right side of my body. I also can have some fatigue, slight sensory problems, and brief periods of mild vertigo. I have had MS for about 14 years now (diagnosed at age 19), and in the past have had a small number of major attacks with coordination problems, vertigo, partial paralysis of my writing hand, and migraine headaches. So I guess I would still call my MS mild because I have only very little disability and have not had that many attacks (probably 10 or less). I don't know if that is the technical way to describe my MS, but it is how I describe it :-)