Is this normal? I try to limit what I do during the day, especially the afternoons because if I do too much in the afternoons I become too tired.

Yesterday I wanted to finally get most of my home cleaned up. It has been a natural disaster for months. I got two levels cleaned- but paid the ultimate price for doing it along with cooking a huge supper in the process. DUMB plan!

By 7:30 pm I started to get very tired along with severe vertigo/nausea. Then the dizziness/bedspins hit me once I laid down on the couch. I wasn't able to eat two bites of my supper and about threw up. Had to eat crackers and spritezero for supper. That was almost to make me sick as well. Went out for ice cream- could barely eat that as well. Tried to watch tv and fell asleep. Was so tired could barely walk upstairs to bed. Never have I ever felt so exhausted- ever.

What on earth is up with that?

I don't get my test results/dx until another week/half. Not sure what is wrong with me but I know it is neurological related. When the neuropsychiatrist asked me to verbally tell him my physical symptoms I was only able to tell him three. However if I could write/type them down I am able to list an entire page of them- with a date/time line of when they started/occur. Do not understand why.

Can anyone explain this? Has this happened to anyone here?

Please help. Advise.

Thank you.

Coffeegirl

hey there!

I'm sorry to hear you're still not doing so well!

If you do end up having MS, then this is completely normal.

Fatigue is like NUMBER 1 symptom of MS. Which really sucks (I feel like I sleep my life away).

I have found that when you are feeling tired and really worn out, you must rest. Not necessarily take a nap, but rest your body and mind for at LEAST 20 minutes. It sucks having to do this, especially days you're very productive and have to take a whole bunch of resting breaks but that's just life with MS as I am finding.

I have also found that when I push myself when I am feeling very fatigued everything starts to malfunction. My vision becomes doubled, I can't think right, stumbling into everything, and the feeling inside my body is awful, after a certain point your body (if it is anything like mine) will shut itself down if you don't rest. I have just passed out multiple times and woke up the next day like whoooaaaa what happened last night.. then my boyfriend says... you fell asleep in the middle of our conversation, sittin up! lol that's when I know I had pushed too far.

So, it sucks, but just rest when you feel tired. It will buy you more time in the day.

Hope this helps!
Be Well!

Once you get diagnosed, whether MS or some other neuro problem, you’ll be pleasantly surprised. Without a diagnosis everything is frightening. Without a diagnosis every time you have the slightest symptom your mind will make a mountain out of it. Once you get diagnosed you will have a direction. You’ll come to know what to expect, and you will become very good in putting things into perspective. Hang in there, kiddo. Better days are ahead.

Geeeeze! I so wish I had someone to tell me that before/during my diagnosis! Those were great words! Very comforting and so very true!

You both gave me great advice. Made my entire week!! I felt like crying when I read both of your posts.

Sadly, yesterday and today I woke up and neither days I was able to walk. I'm really scared. Something is not right. I'm really scared and do not understand. Usually the Balcofen helps keep that at bay and I've doubled the dosage and it isn't working anymore. However I've been outside and the sun/heat has been hot the last few days. Is that what is making me unable to walk? I also have over done it too.

When I mean unable to walk- I am not able to move my legs one day to the point of get out of bed and if I do it I have to use my arms to get them 'to move' and it hurts/aches and is so scary I want to scream. Plus I've fallen when this happens.

Do I need to call my neurologist tomorrow due to this?

Coffeegirl

I would say to definitely stay out of the heat. Not everyone is heat sensitive, but personally the heat/humidity/long exposures of direct sunlight really messes me up, along with extreme cold. But the heat and humidity are the worse, I can't even take hot showers anymore because when it gets hot and humid in the shower I get dizzy and my right side feels like a huge sandbag.

My right side is obviously affected badly by MS so it seems when I have problems with my legs, it's with the right one. My foot drags sometimes and my leg will get really heavy feeling and sometimes feels like its not even a limb on my body, its weird.

But you really must stop overdoing it. If it is MS and you are overdoing it you are doing alot of damage to your CNS. They aren't kidding when they say don't push. I pushed last summer while playing a game of frisbee golf. It was hot out and we had 3 holes left to the game and a huge hill to walk up, I was losing energy very quickly and something in me told me to stop and sit down, but I didn't I told myself I'd push up the hill and then when I got to the top of the hill I would sit down. BAD IDEA. Halfway up the hill I lost my eyesight and the ability of functioning my right leg. I luckily got everything back, but that was after sitting in the middle of the course until my body cooled down and I went home to rest.

I know the stuff you are experiencing is very scary, especially not knowing for sure what the hell is going on, but try your hardest not to stress because that will only make things worse for you (I know that's so much easier said than done). Plus the thing with MS is it's really random, unpredictable, and there's really no control of it. Which makes it rather scary, but I have found that trying to stay as positive and stress free as possible is the best. It's really scary when a limb stops working or you lose your sight, but don't panic because it usually comes back, might take a couple of minutes, days, weeks, months or even years.

I am still really new to the whole MS thing myself, so we can do this together Everybody here has had experiences to share, they really help lift your spirits!

Hang in there coffeegirl!!!!

Fatigue is a demon.
Work out your own rhythm, when it hits you and after what...
All you can do is work around it i reckon. Pushing through doesn't always do you any favours.

Thanks Pud... Learning the hard way. Stupidly.

You're not stupid, coffeegirl. We all learn the hard way.

Here is some words of wisdom from Michael J Fox.

If you spend your life obsessing over the worst case scenario and it doesn't happen, then you've wasted your time. If it does happen, then you've lived it twice.

Remember to rest a lot and stay out of the heat.

I still work full time but when I come home I have to sit down and do nothing. I can't clean the house or do laundry or shop after work or I'll be useless the next day.

Just pace yourself. Take naps if necessary and do housework in little sections on days when you have the extra energy.

My house looks messy most of the time and I have to accept that.

I hope you'll find out soon about what is causing all of this for you.