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-   -   Understanding MS (https://www.neurotalk.org/multiple-sclerosis/136-understanding-ms.html)

wannabe 08-31-2006 03:02 PM

Quote:

Originally Posted by lady_express_44 (Post 2300)
I don't think it was a matter of Cherie "TRYING to take credit" . . . but more of a situation where Cherie just didn't percieve the same value (as you), in tracking "whom" to credit with writing/providing this information.

Continuing to accuse Cherie of purposely trying to mislead people is probably just adding fueling the fire though (even if it is true). The goal is to get resolution, in my mind, not assign blame.

Quote:

Originally Posted by Cherie (Post 1955)
...and "Understanding MS" was edited in length considerably by me and contains very few original intact sentences. Nothing for which I took credit for.

lady express -

This is the phrase that I have objected to. Someone knows if they wrote something or not. This statement is in fact absolutely not true and I think misleading people into believing you wrote it when you didn't is a VERY big issue.

I agree before this statement that this was probably an innocent error of not offering a source. And I treated it as such. But this line leads me to believe that there was intention. I know what I write and what I haven't. It sticks in your mind if you spent time and energy writing something. The language itself will give me clues if I've truly forgotten. For example, I would know that I didn't write this Paul Jones article because I never say the word: "crikey". :)

I would have thought that if someone was innocently making mistakes and this was brought to their attention, they would be contrite and really be eager to correct the misperceptions and errors in not giving credit. And would appreciate that someone had pointed this out to them before they got into big trouble or was fined or sued. I haven't seen that and that is unfortunate.

I respect that you see this differently though. Hopefully we can all learn together to make sure that people DO get credit for their work.

christine bauman 08-31-2006 10:19 PM

Hi everyone, we are in this fight against MS TOGETHER to support each other; together we stand divided we fall. Let us support each other!!!! MS is enough of a battle to deal with. Love you ALL!!!!!!

Bobbi 08-31-2006 11:19 PM

Quote:

Originally Posted by christine bauman (Post 2414)
Hi everyone, we are in this fight against MS TOGETHER to support each other; together we stand divided we fall. Let us support each other!!!! MS is enough of a battle to deal with. Love you ALL!!!!!!

Yes, and, also people whom are new to trying to understanding their testing procedures and the terms and how to cope if dx is made are also reading and wanting to know more.

Can't this thread just be let go? It started on a high note and now... if I found myself faced at the point I was a couple of years ago: I'd be leaving here as fast as possible. No one wants to be ensnared in a firestorm while trying to find info. and support.

Who wrote what? I dunno. But the info that was initially shared was helpful in understanding. I'm sorry that it's gone, when no one has still offered info. about whom actually authored it. Maybe, as I mentioned, it is Public Domain, which actually means that attribution is not mandated.

If I were "new" to being sent for testing, I wouldn't have a part of what's going on here and likely find myself feeling alone.

Can everyone please move on?

Howard 09-02-2006 10:30 PM

Whooooooooooooo lives in a pineapple under the sea.....
oh, HI Bobbi. Pay no atttention to me. I never discuss MS.....SpongeBob SquarePants!!!

Bobbi 09-03-2006 02:35 AM

Kinda hard not to pay attention to you, or anyone whom makes time and takes the effort to post :). For me, posting is an all out effort. So I just imagine it may be for others too.

agate 09-03-2006 11:42 AM

Bobbi, that was my point exactly when I wrote (in this thread, above):

Quote:

Many people with MS are starting up their own Webpages and/or message boards. I do feel strongly that our words, which some of us find difficult to think up and type, should be recognized as ours.
I haven't had a reply from the Paul Jones Website yet but I did have one from the NMSS Website developer, who says that when quoting material on the NMSS Website, it is sufficient to give credit to the NMSS Website and give the page URL.

Cherie 09-03-2006 11:55 AM

Which is in the body of what still exists on this site. Now will folks stop debating and get on with the business of learning to stay healthy with MS and helping each other manage with viable information?

Here is a new source of information i just became aware of. The link is in the post.

New International “Atlas of MS” Launched
The Multiple Sclerosis International Federation (MSIF) has launched the Atlas of MS ( www.atlasofms.org), a searchable database of information on the epidemiology of multiple sclerosis – who gets MS – as well as treatment access and resources available to people with MS within a particular country, region, or worldwide.

Cherie 09-03-2006 03:40 PM

http://www.atlasofms.org/welcome.aspx I hear the link posted has an error message. I just got in with this link.

Tree55 09-10-2006 08:50 AM

If I was a new member, I would stay away from this forum because of this thread. An informative thread was reduced to a personal attack. Cherie was trying to post important info. This was blown way out of proportion.

agate 09-10-2006 11:27 AM

Tree55, welcome!

How about a few words of introduction from you?

I don't see how this thread degenerated into a personal attack. Cherie posted most of an entire Webpage that turned out to be (probably) by Paul Jones, who has an MS Website. She was probably in a hurry and neglected to dig up the relevant information on the source.

Other people came along and felt that giving the source is important for a number of reasons.

It was suggested that Cherie re-post the information and cite the Webpage (the Paul Jones Website) URL as the probable source.

I'm still waiting for an e-mail reply from Paul Jones about whether it's OK with him to use his material on another board like this, provided he's given the credit.

Since he is slow to reply (and it says he is on the Webpage), the best thing to do is probably to re-quote the material with the link to his URL. The material could always be deleted later if he doesn't consent to this use.

That's just my opinion, though. I don't think anyone meant to attack Cherie (clinical1) personally.


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